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ghost melanoma What is this ?

 
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ballcap8
New User


Joined: 29 Sep 2008
Posts: 1
PostPosted: Sat Oct 04, 2008 5:12 pm    Post subject: ghost melanoma Reply with quote
This is my wifes storie

About the first of July she started to have slight pains in her lower back, we just brushed them off as normal. Just befor school started we decided to take the kids on one last trip befor school started. We went to visit my sister at the beach, and after two days the pains continued get get worse. I took her to the emergency room. She was treated for a urinary tract infection and sent home. The pains at this time became allmost unbearable and she started to loose the use of her left leg, so we took her back to the emergency room. We were told she would not be released untill they knew what was causing the pain and ordered an MRI of her spine.

MRI came back showing lesions on the lower spine and fracture of the L4. the tumor had also effected the nerves for the left leg. She was admitted to the hospital and they started to run test to find the original tumor. after Ct of the abdomin and chest they found an grapefruit sized tumor in her upper right lung and enlarged lymph nodes in the chest. A byopsie was done on a lesion on the spine and it came back melanoma. They ordered a PET scan to find the stating spot since she has never had a spot removed, but it came back clean from head to toe.

They started her on radiation for the spine to ease the pain, and now we are waiting to go to NCI to see if she will be accepted for a trial.

We are new to all of this and it is all happening so fast!!! We are trying to keep up our spirits as much as possible, and for the most part we do. Our kids are doing better that I thought they would!

Any ideas on treatments out there would be greatly appreciated, as there are so many its hard to think about what is the best. Sorry this turned out so long.
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tonester
Experienced user


Joined: 03 Mar 2008
Posts: 69
PostPosted: Sat Oct 04, 2008 6:48 pm    Post subject: Re: ghost melanoma Reply with quote
Hey Ballcap,

Welcome.

Very sorry to here about your wifes melanoma.

I'm so glad you posted about her story.

I've been having trouble with use of my left leg as well.

Definately have some questions for my doctors.

As far as her treatments go, take it one step at a time.

Stay positive, and hang in there!!!!!!

Tony
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