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cin
New User
Joined: 09 Mar 2008
Posts: 4
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 Posted: Sun Mar 09, 2008 10:16 pm Post subject: SCLC |
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| My sister as dx with sclc in Dec. 2007 with mets to spine, femur, and ribs. She had 14 treatments of radiation to th spine--for cord compression, which helped tremendously---she no longer has to have help to lift her leg . She just completed her 4th round of chemo--VP-16 and carboplatin. Rec'd scan results last week---dr. said all looks better and tumors are shrinking----we asked for the radiology reports and they don't quite coincide with what the doc said.He also said no enlarged lymph nodes--but the report says "scattered lymph nodes throughout the cervical chain, most are less than 5mm, but on the left side is a 9mm node" does anyone know--is this serious? Will call the doctor tomorrow. We have done so much research and are considering alternative therapies soon----we are desperate to find anything to help. Does anyone know much about oncoplex, hydrazine sulfate or Bill Hendersen's protocol?? Any feedback would be most welcome. Thanks-- Cin |
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In
Site Admin
Joined: 18 Jul 2007
Posts: 1436
Location: AUSTRALIA
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| Posted: Sun Mar 09, 2008 11:45 pm Post subject: Re: SCLC |
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Cin- I'm so sorry about your sister's diagnosis.
It Sounds like you are on the ball, Had/having treatments, looking up information. Finding this Forum, Which should give you great advice and help on things.
All i could recommend is -ask the Dr, everything, even the silliest of questions.
Hopefuly someone will reply soon to you- someone with more of an idea. 
_________________
Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4291
Location: Tennessee
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| Posted: Mon Mar 10, 2008 1:06 am Post subject: Re: SCLC |
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Hi cin, I am very sorry about your sister's cancer. From what you have told us, I can tell you that it is metastasizing to other areas. I am not sure how SCLC is stated but my guess is that it is a stage III or IV or some subdivision. But I know that your question goes deeper than that... you really what to know what this means in terms of how log she will live. Obviously, no one can tell you with any degree of certainty... especially now one on this forum. However, I know of several people who has survived for several years. The received very aggressive therapies. It does sound like you are exploring all options available to her. Others will be able to talk with you more about what these options are.
You and your sister are in my thoughts and prayers.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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cin
New User
Joined: 09 Mar 2008
Posts: 4
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| Posted: Mon Mar 10, 2008 8:35 am Post subject: Re: SCLC |
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| Can you give me an idea of what those aggressive therapies are?? Thanks so much for the reply. Cin |
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pbj11
Site Admin
Joined: 12 May 2007
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| Posted: Mon Mar 10, 2008 2:35 pm Post subject: Re: SCLC |
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Cin,
I'm terribly sorry about your sister. Currently SCLC is staged as LD-SCLC (limited) or ED-SCLC (extensive). Her mets outside of the lung make her ED-SCLC and that isn't a great prognosis. SCLC tends respond well to first line treatment, but because it grows very fast, it usually comes back. Currently there are no cures, but there are a few lines of treatment, although far less than for NSCLC. Certain oncologists are stepping outside of the box in later lines of therapy with agents traditionally used for NSCLC. They have limited success. They usually will do PCI on someone with ED-SCLC to help prevent brain mets. SCLC loves to run to the brain and bones. Is she receiving Zometa to help with bone strength and to ward off future bone mets? Lung cancer, by it's very nature, is a very tough cancer to treat.
Stick with the traditional chemo/radiation therapies. If you decide to explore alternatives, have a consultation with a naturopath who can coordinate any dietary/supplement changes with her oncologist. There are certain supplements that should not be taken with traditional chemotherapy, so it's wise to seek out professional guidance rather than something hyped on the internet.
I know how badly you want to help and understand how helpless you are feeling.
Best wishes,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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cin
New User
Joined: 09 Mar 2008
Posts: 4
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| Posted: Mon Mar 10, 2008 9:58 pm Post subject: Re: SCLC |
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pbj11,
Yes, my sister has extensive stage sclc. Have mentioned PCI to the doc--he says possibly after chemo is done. She has Zometa with every round of chemo. We have agreed that we will stick with traditional therapies until chemo is done---the doc says no antioxidants, vit., mineral supplements, etc---but don't totally agree from what I've researched--she's taking CO Q10 and that's it---was recommended by a MD Anderson person and also several Rn's in the field. Anyway-thanks for the input. Just bought "Beating Cancer with Nutrition" by Patrick Quillin today----ALOT of good info. to do with what you please!!-also very informative and legit--I think. Take care. Cin |
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brainman
Chief Admin
Joined: 13 Oct 2005
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Location: Tennessee
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1301
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| Posted: Tue Mar 11, 2008 12:34 pm Post subject: Re: SCLC |
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Cin,
I am by no means an expert. Just a regular Joe who did a lot of research because we were living this life too.
Sounds like you received all the same advice that we did regarding supplementation/antioxidants. My husband did take B6 and B50, per doctors instructions for peripheral neuropathy and mouth sores, but that is caused by different chemo than what your sister is probably on.
I guess we never explored many alternatives because most of them are immune system boosters and my husband didn't have very many issues with the various chemo regimens. His body had a natural way of bouncing back repeatedly and his immune system was amazing. Which always left me scratching my head over why he developed cancer in the first place. It appears that there was a genetic predisposition toward this cancer in his family.
At any rate, I wish you and your sister all the best. Have faith and hope that she can keep going until a new breakthrough is made to treat this nasty disease. Keep us posted on her progress. We're here when you need us.
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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