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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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 Posted: Mon Aug 13, 2007 1:03 pm Post subject: Here I am (OH BOY!) |
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| So mI've had a very strange summer and now find out the cause: Glioblastoma multiform(forum?) I still can't raise the right vocabulary. Surgery Wednesday 8/8. Right now it fells like everything is gone, what do I know? I *believe* that it takes longer to recover from brain surgery than from knee suregery. Imagine that. Want to return to work, return to ice skating etc. I hope they'll let me!Trying do do research, but able to stop if I don't want to know more. Example: 3 years....unsual to survive that long. Well I planned to live another 60. So I'm in better shape than most. But how can you see. If I last 3 years I'll die younger than Daddy who lived longer than any man in his family! Oh well, right now I feel optimistic and hope for the best. Going to look for source for my (....vocab) prignosis? My quality against the disease? |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
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| Posted: Mon Aug 13, 2007 5:27 pm Post subject: Re: Here I am (OH BOY!) |
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Hi Betty and welcome to the forum. Unfortunately, you joined because you have cancer... as did I and many others here. Brain surgery is actually easier to recover from than knee surgery. At least it was for me. In 2005 I had my second brain surgery and was out of the hospital in 3 days! However, I am still trying to recover from the damage the cancer and then the surgery caused.
Best wishes.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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| Posted: Mon Aug 13, 2007 10:45 pm Post subject: Re: Here I am (OH BOY!) |
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| [ In 2005 I had my second brain surgery and was out of the hospital in 3 days! Well I was out 2 days after surgery, but swelling, strain bruises are longer to recover. Later, it's to late to talk! |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
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michelesmith
Experienced user
Joined: 28 Oct 2005
Posts: 72
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| Posted: Mon Aug 20, 2007 8:04 pm Post subject: Re: Here I am (OH BOY!) |
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Bettye,
Welcome to the forum. I hope you are recovering well. And that you will come back and give us an update.
Michele
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Michele |
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phoneman
New User
Joined: 15 Aug 2007
Posts: 9
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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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| Posted: Tue Aug 21, 2007 6:23 pm Post subject: Re: Here I am (OH BOY!) |
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[quote="phoneman"]agreed welcome and a speedy recovery to you.[/quote]
Phooey on computers! I wrote a whole reply this morning anmd lost it, then the computer died and I couldn't fix it til my brother got ome rfrom work. All's well now, CAT scan tomorrow and we take my otrher brother for colonoscopy.
Main thing: is there a forum more of the patients than the family? This is good but sometimes I'd like to listemn to people who have already been here. |
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jenugl
Moderator
Joined: 24 Sep 2006
Posts: 170
Location: Cairns, Queensland, Australia
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| Posted: Fri Aug 24, 2007 3:39 pm Post subject: Re: Here I am (OH BOY!) |
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| Hi bettyt, Im glad you have joined the forum. I am so sorry that you have been diagnosed with this terrible disease. You have a great attitude being so optimistic - hold on to that thought - it has been helping my partner who has GBMIV. He is still in the clear stage (you can read my story on earlier posts). I know what you mean about computers - they are a great thing but can get you to the stage where you want to throw them out the window. I can understand why you are looking for a site where you can talk to other sufferers of this disease - but please keep in contact with us and let us know how you are going. I think most of the people on here (especially people like Brainman who are fighting this disease) can understand and offer you a great deal of support. My support, thoughts and love to you as you fight with all your might against this. Love to all. Jen |
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In
Moderator
Joined: 18 Jul 2007
Posts: 1279
Location: AUSTRALIA
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| Posted: Fri Aug 24, 2007 5:34 pm Post subject: Re: Here I am (OH BOY!) |
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Hi betty, Welcome. I've found this a great Forum as there is many sufferers, but also a look in on what the family and other love ones feel too. It not only lets me speak to others who are going what i'am. But also why and how my Husband might feel.
Hope you stay in contact., Inica
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Thinking of you Inica
*Administrator*
~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~
My Story-
http://cancerforums.net/viewtopic.php?t=6731
 9 Lives and still kicking |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
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| Posted: Fri Aug 24, 2007 10:33 pm Post subject: Re: Here I am (OH BOY!) |
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[quote="bettyt"]
Main thing: is there a forum more of the patients than the family? This is good but sometimes I'd like to listemn to people who have already been here.[/quote]
Betty, I have been here. I have been here for 15 years! Not with a grade IV but first a grade II and in 2005 with recurrence that was a grade III. My prognosis is that within the next 5 years I will have another recurrence. Will it be a grade IV? I had an MRI Tuesday. Monday night I could not sleep because of that question.
The unfortunate thing about a GBM IV is that there are so very few "long term survivor" to tell us their stories.
I continue to keep you in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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| Posted: Sat Aug 25, 2007 7:29 am Post subject: Re: Here I am (OH BOY!) |
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Betty, I have been here. I have been here for 15 years! Not with a grade IV but first a grade II and in 2005 with recurrence that was a grade III. My prognosis is that within the next 5 years I will have another
Thanks for the info. I'm going to try again. Everything is fine now. I feel better than I have all summer. It aggravates me or something to think back on some of the things that happeened and I didn't realize how bad it was. But then I saw my Dr. (Best in the world) in mid July for physical and she knew something was wrong but not what. When I saw her 8/7 she knew! she could SEE IT. Very funny story sometome about the part where I was not allowed to go to car or home, not that I asked but there's a joke.
Radiation andchemo start probably around 9/1, they haven't figured it all out yet.
While I'm strong, confident, happy, paranoid and suspicious I've decided much.
This disease is not coming back. But when it comes back I need to be nearer to my brother who is taking care of me. That's only fair. So if you're going to sell your houe go on and sell now. Why wait? So today I'm going to go start getting it ready.
The other part is He/they need allaccountants, representatives o\r whoever that handle my things. Who tyo contact, Power of attorney, name on checking accounts etc. Do it all now while happy. Then when and if it coems back IT's done and I don't have to do it crying.
"nother joke. I have a wll, I thought my brothers were executors. Just look and be sure it says the right thing.......my Mama is exectrix. She died in 1995. I guess I need to make a new will too!
Yeah yeah Glioblatoma IV. My research says 3 years at most left. I'm stronger and healthier! I have very good Dr.s I've beaten it (SO far) |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
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| Posted: Sat Aug 25, 2007 1:35 pm Post subject: Re: Here I am (OH BOY!) |
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Betty, I am always amazed and impressed at the resilience of people like yourself! It is great that you have a positive outlook while at the same time making plans and decisions about your future.
I do not think my major problem is selling the house. My major problems is figuring out what to do with everything that is in it  I do not want to do to my children what my parents did me and my siblings... leave a billion slides, scrapbooks, and pictures with no identification on them  LOL. Organizing them is how I spend a lot of me time  .
It does sound like you have a plan of action and are moving forward with it. I hope your treatments go well. Keep posting and keep us informed.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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| Posted: Sat Aug 25, 2007 4:37 pm Post subject: Re: Here I am (OH BOY!) |
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I do not think my major problem is selling the house. My major problems is figuring out what to do with everything that is in it
Well I'm working on that too. Since I helped Mama I have most of Grandma's antiques. Some back to the 1820's. Fortunately we can do just as we did when Grandma came here. Sit down and take turns saying I want. I'm putting it in will that niece and nephew get all and in mean toime brothers and sisters share. If these don't fit in the new house we'll just start sorting sooner! oy am I having a garage sale!. OF course there's a problem with that too. I live in Alabama. Not only do I have radiation and chemotherapy starting, I also have football season starting. I don't want to try garage sale during radiation just in case. But I have to be selective about what game I might miss! Or wait til Dec.....no. Oh well one thing at a time. And I can only do 1/2 days cleaning right now. Seems it takes longer to recover frpm brain surgery than knee surgery. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3319
Location: Tennessee
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| Posted: Sun Aug 26, 2007 1:19 am Post subject: Re: Here I am (OH BOY!) |
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Betty, I really needed your last post. I hope you wrote it laughing because I read it and laughed my head off . I am in Tennessee (football country) and most of my children are in Kentucky (basketball country). It is kind of ruff making a choice of a good weekend for a garage sale almost all year long . Football in the fall, basketball in the spring, summer it is too hot, and winter it is too cold . Oh well, unless someone wants to buy old slides, I don't have much of any value to sell anyhow.
Have a good weekend. Go Vols 
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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bettyt
New User
Joined: 13 Aug 2007
Posts: 7
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| Posted: Sun Aug 26, 2007 4:48 am Post subject: Re: Here I am (OH BOY!) |
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Have a good weekend. Go Vols [/quote] I
OK I'm no longer talking to you ROOOOLLLL TIDE!
My brother thaqt I'm staying with and his wife are Auburn fans. Season ticketholding Auburn fans. Daddy and 1 brother went to Georgia Tech, That brother got his Masters at Auburn where Pat went. I went to Bama. I learned early to be quiet and not talk ugly about other people's treams. Alabama is my team. They could lose every game and they'd still be mine. Now Franchione on the other hand.
When you watch UT on tv do you turn off the sound and listen on the radio? Do we need to not talk about football on a cancer forum. Oh waith this is brain cancer. |
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