Joint Pain

LukeM69 · Regular Joined: 27 Aug 2009 Posts: 20 Location: Brisbane

Hi,

Did anybody with NHL have joint pain as a symptoms of the disease? I have joint pain in my knees, elbows, fingers and ankles. It tends to come and go, was this one of the many symptoms that you had?

Ta,

Don · Posted: Sun Oct 11, 2009 11:35 am Post subject: Re: Joint Pain

How old are you???
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP

LukeM69 · Regular Joined: 27 Aug 2009 Posts: 20 Location: Brisbane

23 male, had a few tests for NHL - have lots of symtptoms but no test has revealed anything significant. Joint pain all over is my latest symptom Confused

ChemoMan · Posted: Sun Oct 11, 2009 3:02 pm Post subject: Re: Joint Pain

Hi LukeM69

Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.

Good luck
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1

LukeM69 · Regular Joined: 27 Aug 2009 Posts: 20 Location: Brisbane

[quote="ChemoMan"]Hi LukeM69

Joint pain is not a usual symptom of NHL. No one here can help you diagnose yourself, you really need to see a doctor. Do yourself a favour , write down any symptoms and any questions you have and take it to the doctor.

Good luck[/quote]

I have had a few tests, my last one was a bone marrow biopsy and I will get the results back next wednesday. Wish me luck.

ChemoMan · Posted: Mon Oct 12, 2009 5:17 am Post subject: Re: Joint Pain

Hi Luke

I wish you all the luck in the world and many many more trips around the Sun Very Happy

_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1

Hbee · New User Joined: 30 Oct 2009 Posts: 1

Luke-

I have the same issue with extremely painful joint pain. My doctor seems to thing that Lymes Disease may have been the culprit. I also have a low-grade folicular lymphoma, non-hodgkins type. I am in stage 3a. I am convinced that untreated Lymes can lead to lymphoma's of these types. I cannot prove it yet, but many doctors recognize a correlation between these two conditions. Which came first the chicken or the egg.

I have also read a bunch of other posts on this forum where the patients suspect a connection even if the medical community will not.

I recommend getting a lymes test done.

LukeM69 · Regular Joined: 27 Aug 2009 Posts: 20 Location: Brisbane

Well its been 2 mths now from the symptoms onset and I am still in limbo with this thing.

I have had lots of tests including a full body CT Scan, Bone Marrow Biopsy/Aspirate, Ultrasound of painful underarms, 8 blood tests looking for every bloody thing under the sun...NOTHING HAS SHOWN. My bloods are normal, bone marrow was clean with all the measurements within normal ranges etc. (I have no enlarged lymph nodes anywhere they can biopsy, I just have the painful axilla nodes that are not enlarged but are very painful)

But, I am still having the symptoms. I still get night sweats, my skin is reddended with little pimple things that come and go, my armpits are still painful (but not enlared) and my lower legs itch and burn without a rash.

I fell like Lymphoma is there somewhere, they just can't find it.

ChemoMan · Posted: Mon Nov 02, 2009 2:46 am Post subject: Re: Joint Pain

Hi LukeM69

It really doesnt look like you have lymphoma as your symptoms are inconsistent with this. I see you live in Brissy, I wonder if you may have picked up Ross river fever as your symptoms are very consistent with this:

http://www.health.nsw.gov.au/factsheets/infectious/rossriver.html

If you have not been checked for Ross River fever I would strongly recommend someone follow this up Exclamation

Good luck
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1

ChemoMan · Posted: Mon Nov 02, 2009 2:48 am Post subject: Re: Joint Pain

Hi Hbee

We don't get lyme disease in Australia. We got much worse bugs than that Wink

_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1

LukeM69 · Regular Joined: 27 Aug 2009 Posts: 20 Location: Brisbane

[quote="ChemoMan"]Hi LukeM69

It really doesnt look like you have lymphoma as your symptoms are inconsistent with this. I see you live in Brissy, I wonder if you may have picked up Ross river fever as your symptoms are very consistent with this:

http://www.health.nsw.gov.au/factsheets/infectious/rossriver.html

If you have not been checked for Ross River fever I would strongly recommend someone follow this up Exclamation

Good luck[/quote]

Interesting, this is a possiblity but there are a number of symptoms that remain unexplained. My C-reactive Protein which generally rises in the face of infections was completly normal, I would think if I have a virus like this I would have an increase there. But this possibly explains the joint pain component of my problem, it is possible I had this for a few weeks but still have something underlying. I have seen 2 Hematologists in Brisbane, 1 has shrugged my off the other one is taking me more seriously.

My very initial symptoms were pain in both armpits, followed by night sweats, followed by burning itchy legs. Many other symtpoms have come and gone in the interum. Joint pain is a symtpom that has gone, but the others remain.

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