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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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 Posted: Sat Jun 13, 2009 5:29 am Post subject: Re: Not sure yet, but pretty scared anyway.... |
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Hi dagit
The fact that nodes are going down and others are coming up discounts lymphoma or at least makes it very unlikely. If the nodes you are feeling are about the size of jelly beans this is normal. What is probably happening is your prodding and poking of your nodes is causing them to swell or you are hypervigilant and finding nodes you could not feel before.
You really should go and see a doctor, no one here can help you at this time. Stop driving yourself crazy, make that appointment as soon as possible.
Good luck
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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| Posted: Sat Jun 13, 2009 6:17 am Post subject: Re: Not sure yet, but pretty scared anyway.... |
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Dagit,
I concur with ChemoMan and again reiterate my last post (with a few spelling corrections). How could it be lymphoma if the nodes go up and down like they are doing...or even cancer? The indolent forms, like I have, "wax and wane" over their course, but NOT like the way you are describing. It takes months for them to change.
If you keep "poking" at them while attempting to find them, then you are going to make them sore...which will worry you more.
Relax.
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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dagit
New User
Joined: 08 Jun 2009
Posts: 7
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| Posted: Fri Jun 19, 2009 5:34 pm Post subject: Not sure yet, but pretty scared anyway.... |
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Hi Guys.
Ive had the results of my blood test and spoken to my Dr (in depth) about the situation and the worry and he has confirmed that i DONT have Lymphoma.
Apparently my glands were up due to infection and/or allergies.
I want to thank you all - especially Don and Chemoman for all of your advice and encouragement, even though i was worrying for nothing and scared beyond belief, the fact that you took the time to give out advice was fantastic.
Thank you both for being there - my hopes and prayers are with you both for a complete and definite recovery.
On another note, I hope that my postings can bring hope to those who have similar symptoms to me and are worrying as much as i was - all for nothing. My Dr said that in a 40 yr career he has only diagnosed Lymphoma twice - so i completely agree with you both, it is incredibly rare.
Good luck to both of you.
All the Best
Dagit. |
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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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| Posted: Fri Jun 19, 2009 7:00 pm Post subject: Re: Not sure yet, but pretty scared anyway.... |
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See...what did we tell you. But if lymphoma is so rare, how come we got it??
See you...Don B
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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