Bone and CT scans

DiO · Posted: Tue May 03, 2005 9:28 am Post subject: Re: Bone and CT scans

Hi Jill,

Your path report sounds very similar to mine, and I am also in MI and also had no scans prior to treatment. I'm in Holland--Grand Rapids area--and can't remember for sure where Shelby Twn is--is that near Flint somewhere? Maybe this is the routine protocol for this area? My onc has seemed to be up on all lastest studies and actually changed his plan for my treatment as we went along because of further research that was coming out, so I don't think it's that they're behind the times! I finished a year ago, and feel that for me at some point I just have to trust my Dr. and move on--will deal with whatever comes up in the future at that point. Many days that's easier said than done, but that's my aim!! Good luck with your treatment.
_________________
God Bless, Di

IDC 12/03 at age 55
lumpectomy, SNB 12/18/03
2cm tumor, 1/6+node, stage 2, grade 2 er/pr+ her2nu-
4 AC, 4 taxol, dose dense
33 rads
Arimidex started 7/04

Muttsmom · Posted: Tue May 03, 2005 10:40 am Post subject: Re: Bone and CT scans

I wasn't implying that your onco was behind the times. I just stated what mine does, which is what I thought she was asking for, what others had done prior to treatment. I'll keep my 2 cents worth to myself from now on.
Best of luck and I'm sure'you'll be great
_________________
Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04

3pturk · Posted: Wed May 04, 2005 3:44 pm Post subject: Re: Bone and CT scans

Hi Di,
Yes, reports quite similar..did you end up with axillary node dissection as well? Just curious. I really don't know who is at liberty to say what is best for each of us. I take what the drs. say is best and make my decisions from that. I think it is great to read what others have been through and those that are just beginning, as myself. It brings about many questions and also interesting to see why protocols may be so different. To muttsmom.. I don't think Di was biting you head off.. please keep giving your input because I feel you can be very helpful. Di Shelby Twp. is about 45 min south of Flint, just East of Rochester, 45 min. North of Detroit. Interesting to note you did not receive these tests either..hhhmmmm.
God Bless and be well....
Jill
_________________
Dx 3-17-05,breast cancer
40 yrs young, Invasive Ductal Carcinoma, 2.5cm
ER+/PR+, Her-2/neu Negative, Grade and Stage 2
1 Sentinel node pos. 17 neg., chemo AC/Taxol ,
rad.tx

DiO · Posted: Wed May 04, 2005 6:33 pm Post subject: Re: Bone and CT scans

Hi Muttsmom,

Didn't mean to sound offended by your post--I appreciate all the words of wisdom and personal experience that you and everyone else on the board have to offer. We all have to take whatever is offered and use it as we see fit, whether that is to act on it or look for further info and maybe reject it, but we can't help but be better off for the input. I've been uncomfortable with the lack of scans, but my Dr. seems to think they're unnecessary, so I guess I'm just trying to rationalize my decision not to press him about it. It's comforting to hear there are others out there who are following the same protocol.

Jill, as far as the dissection, I had six nodes removed at the time of the sentinel node surgery. The surgeon used both dye and radioactive tracer to locate the sentinel node, and removed the five that had either dye or tracer present, plus another one that was close by. The one that was positive was the one node that had a lot of both tracer and dye, and the others had a little of either dye or tracer, but no cancer. The surgeon consulted with more than one colleague, and it was determined that further dissection wasn't needed, which I was happy with since it means less chance of lymphedema as well as that I didn't have to have a second surgery.

Thanks to everyone for all of their input!
_________________
God Bless, Di

IDC 12/03 at age 55
lumpectomy, SNB 12/18/03
2cm tumor, 1/6+node, stage 2, grade 2 er/pr+ her2nu-
4 AC, 4 taxol, dose dense
33 rads
Arimidex started 7/04

Muttsmom · Posted: Wed May 04, 2005 7:04 pm Post subject: Re: Bone and CT scans

Protocols are set by the American Cancer Society and are the same nation wide. Each state doesn't have their own. You might want to call the ACS and see what they say, but I doubt they will say anything implying mine, yours, or someone else's isn't following protocol, they have to stay politically correct. I think the most they would say is some things are up to the discression of the onco, but it might be worth a try. I know they can send literature out that they publish and that might help answer some of your questions.

As long as you feel comfortable and feel like you are getting the best care possible, that is the most important thing. Becoming as educated as possible is also good, just be careful where you get your info from as far as the internet. Leo can probably give you some legit sites you can read and again, the ACS has their literature on just about anything you want to learn about. That's where I learned and was shocked that mammograms miss 45% of all BC in ladies under 50, from the ACS themselves, they just kept it a secret for a long time.

Best of luck
_________________
Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04

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