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brainman
Chief Admin
Joined: 13 Oct 2005
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Location: Tennessee
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zinger
Experienced user
Joined: 09 Jun 2008
Posts: 65
Location: SE Michigan, USA
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 Posted: Wed Jul 16, 2008 8:56 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Wow! Koik, I hope your dear hubby improves so that he can accompany you to Lourdes. Do you know that you are an inspiration to all of us on this forum? Your faith and fortitude, hopefulness and strength are truly amazing. I'll say a prayer to St. Bernadette for YOUR miracle!
Hugs -- Cathy
_________________
Dad ~ lung cancer diagnosed Dec 18, 2003, passed Mar 3, 2004.
Mom ~ lung cancer diagnosed May 27, 2008, passed June 1, 2008
They're waltzing once again... |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1301
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| Posted: Wed Jul 16, 2008 11:15 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
I sure hope you can make the journey to Lourdes. I told my husband, when he was first diagnosed, that I'd take him to Lourdes if need be. It was impossible for us as time went on, but we did get a mass card from there from a family member. God speed on this Koik -- we all continue to pray for you and your husband.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Thu Jul 17, 2008 5:31 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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[quote="brainman"]Oh goodness Koik  . Up and down again . My thoughts and prayers continue to be with you as you walk this journey with your husband.[/quote]
I'm not walking it Jim, I'm running backwards.. 
What is the best method for emptying the bowels..........?
So far... Two mornings of normacol enema
Prunes/plums/figs........Forlax 2x3 per day....plenty of fluid
His stomach is hard and he is in pain and well blocked.....any suggestions most welcome, I am pulling my hair out!  Koik |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4291
Location: Tennessee
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| Posted: Thu Jul 17, 2008 10:30 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, I will have your back then... just do not run over me  .
I just had a colonoscopy which required me to drink 4 liters of Trilyte... I had no problems emptying my bowels but I don't recommend that method to anyone. Unfortunately, there is not a good method for your husband. A lot of people who have to stay in bed all the time get constipated. If he could get up and walk a little, that might help. But i know that is not likely. I am truly very sorry that he is in such pain. Keep pushing forward (not backwards) trying to find a solution that works.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Fri Jul 18, 2008 1:54 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Thanks...Um difficult to know what to give him.
The last time he emptied his bowels was when he was in the main hospital 2nd July.... Where he has started eating, his stomach is full, I stopped food yesterday.
Every time I told someone they said its OK and left it for the next doctor or hospital appointment, now it has come to this!
Anyhow the visiting doctor comes today and I hope she has a good solution to this problem.
Unfortunately he is not quite standing, so the quick brisk walk around the village wont work yet but I do have running shoes ready just in case.
God is Bless, Koik |
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Jes
New User
Joined: 16 Jul 2008
Posts: 4
Location: texas
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| Posted: Fri Jul 18, 2008 7:45 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I have this iin my paperwork from MD Anderson...symptoms for a high impaction...
no bowel movement in 5 days
eating very little/no appetite
nausea after eating
recipe for enema
8 oz of warm water
3 oz of powdered milk
4.5 oz of molasses
Put the water and powdered milk in a jar. Close the jar, and shake it until
it looks mixed. Add molasses. Shake the jar again until the mixture appears to have and even color throughout. Pour the mixture into an enema bag. Gently introduce the tube into the rectum about 12 inches. Do not push beyond resistance. Release the solution high in the colon. Repeat every 6 hours until you no longer expel formed stool.
For a low impaction symptoms are
discomfort with sitting cause you feel like you are sitting on something
cramping in abdomen
feeling like you need to go to bathroom but unable to expel stool
diarrhea leaking around the impaction...
call for professional help
do not drink hot liquid or eat a big meal..... |
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zinger
Experienced user
Joined: 09 Jun 2008
Posts: 65
Location: SE Michigan, USA
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| Posted: Sun Jul 20, 2008 12:26 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi Koik,
Just a quick hello to let you know I'm thinking of you and your hubby. I hope things have settled down and your days are peaceful and restful.
Hugs, Cathy
_________________
Dad ~ lung cancer diagnosed Dec 18, 2003, passed Mar 3, 2004.
Mom ~ lung cancer diagnosed May 27, 2008, passed June 1, 2008
They're waltzing once again... |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4291
Location: Tennessee
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Sun Jul 20, 2008 6:10 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Oh Thank you Jim, I needed that prayer and to you too Zinger for remembering me....
I am off on the downward slope again.. In fact he looks as if he has been hit with a baseball bat! His lip looks swollen and bruised but I think its because of all that wiping lips after drinks and deserts. (not kissing unfortunately) and his eye looks swollen and cheek bone looks puffy? Perhaps the fluid?
He is having a problem drinking and eating AGAIN! There is no point kidding myself unless I get that bed with some roller skates we wont be getting him to Lourdes...He has been down again for the last 3 days.
Friday he had the palliative nurse and assistant at the same time as the doctor and his 2 x a day visiting nurse.
I wondered why the meeting was arranged altogether, around his bed on Friday...Did they know something I didn't and they are not telling?
Friday night..Wow some strange breathing noises we had and then some whaling..then back on the oxygen and then he had terrible pain so the ambulance was called for a duty doctor..
That was the beginning of my week-end and we are still going..
So I am on the depressive side of life again, but that is part of my normality nowadays, but good to know I am not forgotten by you..
God Bless and thanks again for coming in..
Koik |
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Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 796
Location: UK
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| Posted: Sun Jul 20, 2008 6:39 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Koik, I am so sorry you are having a hard time again. Really, the people treating him shouldn't have a meeting and not keep you informed. Do you have anyone with fluent French who could help you to confront them and get an explanation? |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1301
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| Posted: Sun Jul 20, 2008 10:03 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Awww Koik, I'm sorry to hear things are on the slide again my friend. I continue to keep you in my thoughts and prayers. This is just too darn hard for one person to handle. ((((((((Koik)))))))))
Just keep on keeping on and we're all here because you have inspired so many here with a beautiful story of love between you and your dear husband.
Please feel our arms around you and our hands holding yours.
Check back and let us know how he and you are doing.
God bless,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4291
Location: Tennessee
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| Posted: Mon Jul 21, 2008 8:05 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, I wish I had other words to say. This is a terrible roller coaster ride you are on... one that can in no way be thought of as "fun". You have become a very important member of this community and there are a lot of use praying for you. Truly, I am sorry that your trip to Lourdes sounds like it will not happen. Has your priest come by to anoint your husband? You know that since Vatican II it is no longer the anointing of the dieing but the anointing of the sick? Even though a lot of people think of religion as a crutch, I am not one of them. Religious rituals and rights are very important ways that we connect to our Higher Power.
May God bless you and keep you.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Mon Jul 21, 2008 1:34 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi
Updating the roller-coaster.......
Palliative care nurses came in, doctor passes tomorrow...he is the same. Mainly he sleeps or just stares expressionless. He sometimes whales in his sleep or half sleep and this breaks my heart because I don't know if he is crying or he is in pain. I am so FED-UP! I have tried everything like all of us trying to keep our loved ones alive, but looking at him, he is not he!
I am so dam selfish I push him on for another day.
Although he talks mumble sometimes and very low, I catch little words and I feel something alive with hope again.. But! really what hope is there here..He wants to live and I want him with me but this is not to happen and he is delaying his death I think for me..
I would like to introduce my husband, his name is Daniel. He is a very proud man, strong in character and sweet in nature. I can honestly say I couldn't of wished for a better husband. He has taught me so much and when this is all over I have no idea what I will do. I am scared but I know I have to let go as this is cruel what he is going through and I know he didn't want to suffer like this..
Thank you for reading my post and letting me vent my feelings and anger once again.. God Bless you all, Koik |
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Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 796
Location: UK
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| Posted: Mon Jul 21, 2008 2:18 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Poor Daniel - well and truly in the lions' den.
I do so feel your pain, Koik, and am thinking of you all the time. This is such an awful situation. |
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