My dad has liver cancer looking for stories, support or info

karolynca · Regular Joined: 13 May 2008 Posts: 11

Hi my dad has secondary liver cancer and his bile ducts are blocked, right now he is jaundice, his feet are a little inflamated and so it's his stomach I guess, just not much. Although Dr is running some tests and plans to see my dad next Wednesday he said there was not much he could do. Tonight he has pain, not much, seems to be manageable without drugs although he just took a pain medication not very strong.

I am so sad, I am newly pregnant of my first child after battling infertility for 6 years and I had to hire someone that's staying with my parents to help him and my mom, I am the only daughter living here as my only sister lives overseas.

My mom said he has been feeling particulary tired today and stayed in bed most of the time since noon. I so wish not to see him in pain Crying or Very sad

he is my sunshine, the very best dad in the world, my best friend, the man that made me all I am today. My heart is broken.

I am looking for your stories, words of support or information as of what should I expect as honestly I think he is in his last stages specially considering that his bile ducts are shut and he is no candidate for stents. Crying or Very sad

brainman

Hi karolynca. I am very sorry about your father's cancer. You say that it is a secondary liver cancer. Where is the primary cancer? This particular forum is for people with PRIMARY liver cancers. You will probably get more appropriate replies with this post was moved to the forum addressing your father's primary cancer. I can move this topic for you.

I ways the primary care provider for both of my parents when they had cancer. My heart really does go out to you. It is not easy to see someone you love so much being that sick Sad

.

You and your father are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

karolynca · Regular Joined: 13 May 2008 Posts: 11

Thanks for replying, his story goes like this, he was operated as an emergency because he was evacuating and vomiting blood back in November, the Dr discovered a mass the size of a softball that was surrounding the liver, bile ducts and also connected to part of the small bowels. The Dr. said that probably it originated at the small bowel but since it was so spread and so surrounding the liver they are not sure if maybe originated around the bile ducts, so honestly we don't have an answer for that. The bleeding he had was the tumor that infiltrated in the small bowels so he had to have his small bowel and stomach kind of cut and reattached the procedure was a subtotal gastroctomy (sp?). The oncologist did say the major organ in risk and where there was 90% of chances the cancer spread was to the liver. Right now that's where it is...sadly. Sorry if I posted in the wrong place I will accept suggestions as to where I can post in the forums.

brainman

karolynca, no need to apologize. It is just a matter of where you will receive the more appropriate information and hear stories that more accurately can be compared to your. However, since you do not know where the primary is, this forum is alright.

Have the actually done a biopsy? A biopsy will at least inform your father's medical team of the cell type they are dealing with. The cell type more than the specific primary location will govern what options for treatments are available to your father. It does sound like it is a very advanced and aggressive cancer.

You and your father are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

karolynca · Regular Joined: 13 May 2008 Posts: 11

Thanks so much Jim, you have been of incredible support. Yes the did a biopsy, all they said was that it was a Stage IV Neoplasia that most probably originated either in the small bowels or in the bile ducts, due to the tumor location they think it was in the bile ducts or surrounding the liver. My dad was a heavier smoker for years, he quitted only 6 years ago.

In terms of treatment the Dr said that Chemo or Radiation could kill him faster as he had to undergo a very aggressive operation and 7 blood transfusions besides he said all we could win with those procedures were mere 2 months of life more if the side effects didn't kill him first. He has high blood pressure and since he was a smoker he has enfisema so as you can see what's really killing me is the sit and wait game Crying or Very sad

mard · New User Joined: 26 May 2008 Posts: 2

Hi , am new to this forum, like Karolynca my father has cancer and am also looking for support and info. My father was diagnosed with primary hepatocellular cancer about three months ago.His tumor is large 10 cm and about 4 inches long, its actually hard to beleive his liver function is still as good as it is. I am the primary care giver , its just my sister and myself and she lives two hours away but does come on the weekends to help. My father lives by himself and we have just signed up for hospice. I am scared, and admit it , I am concerned now because his ankles and feet are so swollen and he is very jaundice. I worry I will get a call from him in the middle of the night and now I cant call 911 I will have to call the hospice nurse for instruction . We just had a meeting with the hospice social worker,she was very nice,but I still feel like we are flying by the seat of our pants not knowing what will happen next. He feeds himself and gets around right now with a walker but seems to be getting weaker, and we do have a plan to start implemnting aides to come in , but he is a very stubborn and proud man, and he thinks he can do it on his own or with just us, I am hoping he will agree . I guess I would like any kind of imput on maybe what I can expect next , I know nothing is certain,but I feel like researching anything will help me cope alittle better Thanks

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