| Author |
|
brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3299
Location: Tennessee
|
 Posted: Sat Apr 12, 2008 3:52 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
 |
|
Koik, I am glad that I was able to help. I just wish I could have told you that you had nothing to worry about  . It is hard enough to be sick, but to be sick so far from home... my heart really does go out to you and your husband.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
|
| Back to top |
|
|
|
Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 631
Location: UK
|
| Posted: Sat Apr 12, 2008 4:17 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Koik, I am thinking of you and your husband.
In the meantime, you need to contact the Indian Embassy to ask about repatriation of a body. Do you have any kind of travel insurance which might help on costs?
I found this British company, who might be worth contacting to ask for advice: http://www.skytraderuk.com/page.asp?action=show3&productid=28 |
|
| Back to top |
|
|
|
koikkeril
Senior User
Joined: 29 Jul 2007
Posts: 148
|
| Posted: Sun Apr 13, 2008 6:55 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
This bottomless pit in my stomach is there all the time now, its taking my breath away and killing my heart. I have just driven an hour home to go back again! Last night my dear husband confused/depressed and cant bear to look at me anymore keeps his eyes closed and wont talk to me only the doctors, pulled his intravenous out of his arm last night. I heard a noise and went to the bed about 4am to find blood on his pillow and trying to clamber around to see what had happened i realised he was that depressed and wanting to go! OOOOH I am broken-hearted, My poor darling and all those who suffer like this, the pain for them and us. I will be contacting Indian and British embassy, unfortunately no insurance we were going to retire in Kerala so we didn't expect this nightmare to come to us. What ignorance! Anyhow thanks, and its good to be able to express my pain. I am so trying to stay strong, I will feel better when I can find arrangements to carry him home and when I get there also. Koik
Last edited by koikkeril on Sat Apr 26, 2008 7:01 am; edited 1 time in total |
|
| Back to top |
|
|
|
koikkeril
Senior User
Joined: 29 Jul 2007
Posts: 148
|
| Posted: Sun Apr 13, 2008 12:26 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
I guess what goes up, comes down and vica versa: : When i got back to the hospital he had his eyes open and asked for a coffee,  Can you believe that? Yes he drunk it!  First drink for the fourth day.  Anyhow they reduced a drug for sickness,  They say something like Loxapine, but not sure as its French. Apparently it puts you asleep and confuses you. Some wonderful drug. He even joked with me, so now I am happy again.  Spoke to his family, his mum and brother are coming here and that has lifted him a lot. So I think he will fight on to see his mum! Hope you don't mind me going crazy here but at least i get my feelings posted away. Koik is back on track for the next round, God Bless.
Last edited by koikkeril on Sat Apr 26, 2008 7:02 am; edited 1 time in total |
|
| Back to top |
|
|
|
Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 631
Location: UK
|
| Posted: Sun Apr 13, 2008 1:18 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Oh, Koik, I am sooo glad some of his family are coming. It will help you too to have them there.
Some of the side effects of drugs are worse than the conditions, so it is good that the doctors are enough on the ball to realize that it might be one of the drugs that was causing his confusion.
Go crazy here as much as you like. |
|
| Back to top |
|
|
|
Nurse Penfold
Regular
Joined: 15 Mar 2008
Posts: 11
|
| Posted: Sun Apr 13, 2008 2:17 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
| Thinking and praying for you both. Today I took our children to a theme park ... our youngest said, Mummy this rollercoster is like the last 3 months, full of ups and downs but we have got off it now and we have to go to the next ride!! Unbelievable, TW would be so proud! |
|
| Back to top |
|
|
|
pbj11
Site Admin
Joined: 12 May 2007
Posts: 793
|
| Posted: Sun Apr 13, 2008 3:02 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Koik,
Oh my dear friend, the emotional ride you are on with your husband is beyond comprehension. Vent and be as crazy as you want to be --- although I don't see a darn crazy thing about it! It's what we go through and I'm glad you feel comfortable to express your feelings here. We'll always be here to listen and send you hugs.
I hope his Mom and family can make it there and glad to hear they are coming. It will be wonderful for both of you to have family around.
((Julie))----
Oh, the wisdom of a child. That's exactly how I felt -- I got off of one roller coaster just to get in line for the next one. I don't like roller coasters! I'll be holding you in my thoughts and prayers as you move through the next days. Bless you for being such a caring person -- you and TW made such a great team and his spirit lives on through you and the kids.
Hugs to all,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
|
| Back to top |
|
|
|
brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3299
Location: Tennessee
|
| Posted: Sun Apr 13, 2008 4:04 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Koik, I am very happy for you and your husband . I am glad that his mother is able to come to visit with him. Stay on top of the mountain for a while and enjoy the view .
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
|
| Back to top |
|
|
|
Tera
Experienced user
Joined: 31 Dec 2007
Posts: 99
|
| Posted: Sun Apr 13, 2008 9:51 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
| Koik, that is wonderful news!! I know it did your heart good to see him more alert and drinking something. And he probably will hang on to see his family. I strongly believe my mom did just that to see her brother. |
|
| Back to top |
|
|
|
koikkeril
Senior User
Joined: 29 Jul 2007
Posts: 148
|
| Posted: Mon Apr 14, 2008 6:29 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Ah Bless you all, you know exactly what to say at the right moment. I feel much happier to hear him speak to me. I think he will hang on for his mum to arrive, you can see the joy when i told him. Thanks, today they are giving another shot of chemo ??? Bless you all koik
Last edited by koikkeril on Sat Apr 26, 2008 7:03 am; edited 1 time in total |
|
| Back to top |
|
|
|
Darwin
Experienced user
Joined: 11 Feb 2008
Posts: 82
Location: Darwin Australia
|
| Posted: Tue Apr 15, 2008 10:31 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Dearest Koikkeril
My thoughts and prayers are with you and your husband. We are also at present considering moving back to Perth and don't know if that will be a possibility.
So many areas of uncertainty with this dreadful disease but in all this you have strength in the knowledge that you are the loving wife of a loving husband. Above all else love remains. Try to take some time for yourself and be gentle with yourself. You are doing all you can. Love to you both
Dorothy
_________________
Ex husband's diagnosis was March 2006, stage IV bowel cancer with met to liver and lungs. Current chemo treatment folfiri + avastin +erbitux (cetuximab) every two weeks. |
|
| Back to top |
|
|
|
Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 631
Location: UK
|
| Posted: Thu Apr 24, 2008 2:29 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Thinking of you, Koikkeril.
If and when you have a moment, do please let us know how things are. |
|
| Back to top |
|
|
|
Nurse Penfold
Regular
Joined: 15 Mar 2008
Posts: 11
|
| Posted: Thu Apr 24, 2008 3:43 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
| Even though I have my own battles right now, I have been thinking of you quite a lot, please update us |
|
| Back to top |
|
|
|
koikkeril
Senior User
Joined: 29 Jul 2007
Posts: 148
|
| Posted: Fri Apr 25, 2008 8:59 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
Hello Nurse Penfold/Vee and Darwin, Thanks for your replies. I can image the battle you are going through right now Julie because I too have you in my mind! My climb is still steep and slippery, but with what I am seeing, I hope soon my husband will sleep peacefully! Darwin, as my husband could not get home, he is now awaiting for his mums and brothers arrival, I hope that they will arrive the early part of next week? The doctors think he is hanging on in there, for this reason! I very much hope you are able to get back to Perth?
My husband is now very confused, he is sad as he has pulled out his drips and is constantly found on the floor without them, so now he has none! He would eat or drink, but yesterday evening, I explained his mum and brother were coming so he had to get strong. I asked him what would he like to try and he said Chinese soup. Last night quick trip to take-away, he had Chinese soup + chopsey, we cant believe we saw him tucking in and he hadn't had hard food for 3 weeks! Hospital says what he wants, let him eat. So, I have had many sad shocks, finding him pulling out his drips, being in adult nappies, refusing food/drink. Paranoid/confused/forgetting/imagining, he's doing all! Last night he was convinced, there was a ship hiding behind the Palace outside the hospital. I only hope his mother realises how ill he is now. I am coping Okay, it is very sad seeing him like this, sometimes he understands some and then he understands nothing! I have often tried to write on this site, but somehow my brain just can't focus through tiredness. I sleep in the same room as my husband in the hospital, you can imagine the sleep I get?
Anyhow, thanks again and strength to all those whom are fighting this awful sad illness.
Last edited by koikkeril on Sat Apr 26, 2008 7:03 am; edited 2 times in total |
|
| Back to top |
|
|
|
Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 631
Location: UK
|
| Posted: Sat Apr 26, 2008 6:33 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
|
|
| Hi, koikkeril, as always my thoughts are with you and your husband. This is such a hard time to be in, and I do hope his mother will be with you very soon. |
|
| Back to top |
|
|
|
|
Search 
Email Digests
Register to post
Profile 
Check private messages 
Log in
What is this ?
We subscribe to the HONcode principles. Verify here. All content and posts are copyright.
