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Mom has rare supertentorial PNET What is this ?

 
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mich32
New User


Joined: 12 Apr 2008
Posts: 1
Location: Indiana
PostPosted: Mon Apr 14, 2008 7:23 am    Post subject: Mom has rare supertentorial PNET Reply with quote
This is just a rare tumor of the brain and I have been digging for answers for months. And its the answers I don't want to hear. The outcome is not good. Has anyone delt with this before?
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 3457
Location: Tennessee
PostPosted: Mon Apr 14, 2008 7:34 am    Post subject: Re: Mom has rare supertentorial PNET Reply with quote
mich32, you are the second person within a week that has posted about PNET... the first time I have ever heard about this cancer. I did move your post to the brain cancer forum. I hope that the two of you can support each other and learn together about this rare form of brain cancer.

The link to the other person's story is:

http://cancerforums.net/viewtopic.php?p=32907

You are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/
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kytallgirl
New User


Joined: 28 Jun 2008
Posts: 9
PostPosted: Sat Jul 05, 2008 8:55 am    Post subject: P-NET Reply with quote
Hello Mich....so sorry to hear about your sweet mother. P-NET is so unique, there is very little info on this type of cancer. My daughter-in-law has just been diagnosed with (pheriphal) P-NET which means it is NOT in the blood, brains or bones. It looks more like Ewings. Her mass measures 15 x 121/2 inches! Located in her lower stomach. Cannot operate as mass is wrapped around a major artery going to the small intestines. She's only 22...
The main thing I think is to stay postive! She is scared and there are alot of unknowns. We are all believers in the healing that can only come from our Lord and Savior so PRAY! God will hear you! I will pray for you and yours for a complete recovery...hang in there!

Sherron
DIL diagnosed with (pheriphal) PNETS April 2008
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