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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Sun Apr 06, 2008 1:47 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi there PJB. Just got back from the hospital and he has eaten a little, hurray. Tomorrow is the morphine pump and Tuesday is Chemo! God Bless him now, he is weak, but he needs to prolong this if he can. Dr says he can take flight if his headache goes. I am not too bad today, beginning to accept life as it is, I think! Or is this the courageous 10 minute act? You yourself I have always admired, with the suffering you went through and then getting on here and helping all of us. You have collected on route so much medical knowledge it goes to show how we learn our husbands and dear one's illnesses, but you beat us all, you, we should call Dr PJB, LOL, hugs to you and thanks for your post.
Last edited by koikkeril on Sat Apr 26, 2008 6:52 am; edited 3 times in total |
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pbj11 Site Admin
Joined: 12 May 2007 Posts: 792
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Posted: Sun Apr 06, 2008 2:09 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Glad to hear that there is at least a possibility of getting him on an airplane. That will help his mental state and give him strength.
Ha -- 10 minute courage. Yes! Sometimes that IS how it feels. Go with the flow and please take care of yourself also!
Hugs,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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Vee Smith Moderator
Joined: 12 Feb 2006 Posts: 631 Location: UK
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Posted: Sun Apr 06, 2008 3:41 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Great news - I will keep my fingers and toes crossed for him and you. |
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Tera Experienced user
Joined: 31 Dec 2007 Posts: 99
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Posted: Sun Apr 06, 2008 10:34 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Good news. Please keep us posted. We will pray that his headache eases so he can go home. |
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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Tue Apr 08, 2008 4:36 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi, His headaches are still a problem and he is well drugged up, in fact, one minute he thinks he is in Kerala and then he thinks he is here in France, so I don't know, but! thanks for fingers and toes crossed I think we need arms, legs and eyelashes too here! Perhaps one of you has a spare Jet you could lend? I can't say i know how to fly it! No-one can say how close it is, but he has his piece put in place for the pump. They said they will attach the pump when needed but for now he is having the morphine put directly into the back. Quell journey! The day is only just beginning and the chemo starts today or tomorrow. Off to the hospital with a bucket of food for him, care and blessings to all of you, koik
Last edited by koikkeril on Sat Apr 26, 2008 6:53 am; edited 3 times in total |
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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Tue Apr 08, 2008 4:58 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I have had a shock today, the Doctor said they are not putting a pump on my husband because it is to expensive and they think he may die in the next day or two. But! Today they gave chemo, how b***** confusing this is? I thought he had a chance of maybe picking up enough to get on a flight, quoted by the Doc! I should imagine with that sentence he was thinking of at least a couple of weeks???+ Now its a couple of days! No pump for pain, Am I in dream world here? I am not ready, but are we ever? Bless all of you!
Last edited by koikkeril on Sat Apr 26, 2008 6:54 am; edited 1 time in total |
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pbj11 Site Admin
Joined: 12 May 2007 Posts: 792
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Posted: Tue Apr 08, 2008 11:32 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Aaarrghhhh!!! What is wrong with these doctors?? Your husband's comfort is the most important thing right now. Do they think they can control the pain without the pump?
I'm sending prayers and every good thought your way. I'm so sorry that the doctors are being uncooperative and idiots. I hope you have more time with your dear husband and he is being kept comfortable.
God bless you and be with you now my friend. My heart breaks for such a loving and caring wife as you are.
Hugs,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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brainman Site Admin

Joined: 13 Oct 2005 Posts: 3299 Location: Tennessee
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Posted: Wed Apr 09, 2008 9:22 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, it is hard to believe the roller coaster ride you have been on. No meds for pain???? I would challenge that. You need to be your husband's advocate. There is no reason for your husband to be in pain. His medical team has the responsibility to keep in pain free even if they their prognosis for him is poor.
You and your husband are in my thoughts and prayers. _________________ Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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Tera Experienced user
Joined: 31 Dec 2007 Posts: 99
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Posted: Thu Apr 10, 2008 11:31 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Koik, I'm getting a little worried about you....we didn't hear from you yesterday or yet today. Sending hugs your way, we're here if you need to talk. |
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pbj11 Site Admin
Joined: 12 May 2007 Posts: 792
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Posted: Thu Apr 10, 2008 1:46 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Good heads-up Tera.
Calling out to Koikkeril and praying that everything is alright.
Hugs,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Fri Apr 11, 2008 8:34 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Thank you. I think I mentioned that the doctor thinks that my husband will live perhaps another 1 or 2 days. That was on Tuesday. I have popped home. But I mainly sleep and stay in the hospital now. Today is the 3rd day. He sleeps most of the time now and he is very drugged. He does not drink or eat. Please keep me in your prayers because by Jove I need them. Blessing you all too, koik
Last edited by koikkeril on Sat Apr 26, 2008 6:58 am; edited 1 time in total |
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brainman Site Admin

Joined: 13 Oct 2005 Posts: 3299 Location: Tennessee
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pbj11 Site Admin
Joined: 12 May 2007 Posts: 792
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Posted: Fri Apr 11, 2008 12:21 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koikkeril,
I know how difficult this time is for you and trust me, you are in my thoughts and prayers. I pray for his comfort and God's peace to be with both of you. Watching the person you have loved and cherished as your husband go through this is the hardest thing you will do in life. Please eat and get your rest as you sit in vigil with him. Hold his hand, talk to him, and he will know you are there loving him always. I'm so sad for you.
Much love and many hugs from across the big pond,
PBJ _________________ Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Sat Apr 12, 2008 3:39 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hello there, They have given me the Internet in his room. That's good! Poor Julie, my heart goes to her. I know I have the same journey to go. This french keyboard drives me mad, cant find the keys! My husband was drugged so high, yesterday he knew nothing. Then during the night I heard him say ¨Where is my wife?¨ It made me proud and I smiled thinking he is still in our world. So now he can understand some but talks little. I wish he had had the pump to control the morphine, I know he would want it like this. I have asked them to not give him the same amount as yesterday so he can tell them what he wants, the day before he had refused extra morphine. Its one extreme to another! They have removed the drip of glucose, he does not drink or eat, they will put it back on soon, i hope. So another day is going by, thinking of all of you sufferers, bless you, koik
Last edited by koikkeril on Sat Apr 26, 2008 6:59 am; edited 1 time in total |
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koikkeril Senior User

Joined: 29 Jul 2007 Posts: 148
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Posted: Sat Apr 12, 2008 12:08 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I want to say a special thank you for Brainman. If it wasn't for your post telling me that cancer can come back, I would of continued being in fairy land, thinking he was cured!! I want you to know that after you posted that to me, I realised you were absolutely correct and in fact that post helped me to accept that it has come back and i am not in shock! Imagine the heartbreak if you were led to believe this was gone and then here it is again? Thanks Jim, because I knew so little on cancer until my husband got it, so I believed what i was told, but your post put it into reality.
Secondly, anyone has ideas on how to repair a deceased body from Paris to Kerala India. Terrified of the cost, I need to try to find info before my husband passes because i know my brain will be shot, so i am trying to be strong and find out info. Thanks koik
Last edited by koikkeril on Sat Apr 26, 2008 6:59 am; edited 1 time in total |
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