scared to death!!!!!!

llcoolbeans · New User Joined: 18 Feb 2008 Posts: 8

Here is a quick history:
In late 2004 I had a bad pap followed by a colposcopy. The final results showed a slight dysplasia, but my doctor said everything looked good. In late 2006 I began heavy bleeding and passing large clots. The doctor did an ultrasound and found a polyp. He followed up with a hysterscope and a D&C in Feburary of 2007. They found about a half dozen polyps which all tested negative for cancer. This was supposed to solve all my problems. It didn't do a thing. I continued with extremely heavy periods and passing clots the size of Texas. I lived with it for about a year before going back to the doctor due to poor insurance during that time. Now the feels it could be endometrial cancer or a return of the polyps. He said several times that it is rare for a woman of my age who had normal periods most of my life. My fear is that I have had cancer this whole time and he missed it the first time around. Shouldn't I have had a reduction in the bleeding at least for a short time follwoing the D&C? I am only 39 yet very overweight which greatly increases my chances. He did a pap last week and asked me to schedule an ultrasound for 2weeks later at which time he will also have the results of the pap. He will do a biopsy at that time if he thinks it is warranted. I feel it is highly unlikey that my scheduled ultrasound will show polyps. I also have been experiencing a weird intermittent burning sensation about 3 inches over from my navel and an inch or so down from there. Along with urinary incontinence. i need to urinate immediately after drinking and often leak urine through the day. My biggest worry is that the cancer has spread and that is why I am having these other symptoms. Please share any info you might have

llcoolbeans · New User Joined: 18 Feb 2008 Posts: 8

Was hoping for some words of wisdom by someone who has been down this road.

brainman · Posted: Wed Feb 20, 2008 11:55 am Post subject: Re: scared to death!!!!!!

llcoolbeans, I am very sorry about your cancer. I will try to find someone who knows what you are going through.

You are in my thoughts and prayers.
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rmaureen · Experienced user Joined: 06 Oct 2005 Posts: 79

Hi llcoolbeans:

Sorry to hear what you are going through. I am a twin, and both my sister and i had some similarities but went down different roads, as i was diagnosed with uterine cancer in 2005. I and her experienced abnormal bleeding, she however had endometriosis and not cancer, thank God for that. I had several ultrasounds revealing multiple fibroids and cysts, but it was not until a hysterectomy 1.5 years after those tests that the cancer was found. HAD an endometrial biopsy been performed earlier, it would had been discovered almost two years before my operation.

I advise you to tell the doctor you want to rule cancer out, and demand the biopsy. My gyno went by the ultrasound assuring me that I did not have cancer, and it was stage 3-c by the time of my surgery. Frequent urination can be caused by several factors, even some allergy meds, but it can also indicate a serious condition.

My best advice is easily said, but hard to do, and that is be persistent in getting the tests you need to rule out cancer, and once it is ruled out, work with your doctor to determine the cause. Believe for the best. As I said before, my twin sister also had similar symptoms, and thankfully no cancer. Fibroids can cause weird heavy bleeding, and massive clotting and that also will put pressure on your bladder. God bless, and keep us informed. You are in my prayers.

Rhonda

llcoolbeans · New User Joined: 18 Feb 2008 Posts: 8

[size=18]Yesterday was my doctors appointment in which I was scheduled for an ultrasound and a biopsy. Well, the doc took one look at the ultrasound and the first words out of his mouth were, "So, how attached to your uterus are you?" He said I needed to get it to come out. Apparently, my lining is at 18. During the exam I mentioned to the tech that I was having right sided pain in my ovary region. She explained that to the doctor when he came in but then added, "However, I found ???? on her left ovary." I am not sure what she said because by this time my head was already spinning. I believe it might have begun with a D. Who knows. So he said on top of removing my uterus he may be removing my ovaries. He will take a look at them when he is in there.

Now I am scared that the cancer is beyond stage 1 and has spread into my ovaries. He could not talk to me very long as he was being called in for emergency surgery so he told me to call his nurse later that day. Which I did. We scheduled my surgery for an entire month away! That is because I said I had to be at my son's State Championship meet in 2 weeks. The doctor said the surgery could wait. I asked the nurse if it was ok to wait if I had cancer. She then said, "Cancer? I didn't know that was even a consideration!" She read through the doctors notes and it was not mentioned at all. That is somewhat of a relief. She said that since my pap came back clear that I should not be worried. I didn't know that a pap indicated endo cancer...I thought it was for cervical cancer. [/size]

rmaureen · Experienced user Joined: 06 Oct 2005 Posts: 79

Hi llcoolbeans,

An ultrasound will not give you a definitive answer as to whether it is cancer, nor will a pap smear always indicate uterine cancer. My paps where normal, and by the time i had my hysterectomy cancer had gone from my uterus to my cervix--(stage 3-c). My ultrasound revealed cysts on my ovaries--but they were benign cysts. My OBGYN told me cysts are common on ovaries, and when she prescribed birth control pills for me, they disappeared. However, i did have uterine cancer, and had a biopsy been performed, it would had revealed this.

One thing i strongly urge, is for you to ask for a copy of the ultrasound report and its findings. Then arm yourself with questions, bring a list with you and rattle your questions off. Dont worry about inconveniencing them, its your life and your body, and you have a right to know why he comes to the conclusions he comes to. Yesterday, two doctors where talking "over" me concerning a suspicious bump on my arm. as if i weren't there, and you better believe i interrupted them with questions. I have learned with too much practice, that many doctors will leave you in the dark as to why they perform certain procedures unless you ask them.

Hysterectomies are often performed for people with these type of symptoms, and the majority of time no cancer is found. For myself, I give my fears to God, and trust Him to take me through. When anyone confronts the unknown like this, you cannot help but fear. I am facing now the possibility of a second cancer diagnosis when i just got back my cat scan on my pelvis indicating it was normal. And i will not have any answers until the biopsy or surgery is performed, and i know how tough it is to face the unknown like this. My heart so goes out to you, i wish i could calm your fears, but realistically until you get a definitive answer it will be difficult for you. BUt i do want to say again, most of the time, its not cancer on such cases. And that is my prayer for you. Believe for the best, knowing it is far more unlikely than likely. Keep us posted and i am continuing to pray for you.

Rhonda

In · Posted: Tue Mar 04, 2008 4:36 am Post subject: Re: scared to death!!!!!!

Hi llcoolbeans,

I'm in agreeance with Rhonda- Paps will only show up cervical cancer or at the neck of the womb. So normally it is well advanced if found through a pap smear. Or spreding out rathert han in. Though by doing that it normally spreads into the lymph glands near the cervix.

All I can say is ask - and ask again. Even the sillest of questions, before they even think about touching you.

Good Luck and I will be thinking of you. Keep your chin up
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llcoolbeans · New User Joined: 18 Feb 2008 Posts: 8

Thank you all for your replies. If all the uncertainty with my uterus was not enough now I have to get a colonoscopy because my primary care physician is worried that I have something in my colon causing pain and flattened stool. I give up! My fear now is that I do have cancer whether it is colon or uterine and it has spread to the other organ.

I was actually doing ok emotionally until my doc told me today to get the colonoscopy right away.

Calgon take me away!!!!!!

In · Posted: Tue Mar 11, 2008 3:47 am Post subject: Re: scared to death!!!!!!

Try to think positive (i know, it's hard- AND EASIER TO SAY THEN DO)

- at least they are looking into it, and on top of it all. Try not to be worried- again- hard... It may just be them trying to check it all out and find whats happening. or ruling it out.

When are you having it done?
_________________
Thinking of you Inica

**Administrator**

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731

Smile

9 Lives and still kicking Smile

llcoolbeans · New User Joined: 18 Feb 2008 Posts: 8

I have to call the scheduler back today for the colonoscopy. I just hope they can do it BEFORE my hysterectomy on the 25th. It would be some time after it that I would be well enough to have it done and I can't imagine waiting that long. I just want answers.

Someone informed me today that the chances of having one form of cancer and it having spread is very high with all the symptoms I have. That was reassuring!

rmaureen · Experienced user Joined: 06 Oct 2005 Posts: 79

Hi llcoolbeans:D

Dont go by arm chair physicians. There are all kinds of variables which can come into play for your symptoms, and none of them may necessarily be cancer. I got symptoms in my body, including the possibility of trigeminal neuralgia, other stuff, and none of them are necessarily related to cancer other than radiation causing osteopenia. I got my results from a biopsy today for a lesion and thank God it was benign.

Last year, doctors claimed they found blood during a rectal exam... scared the crap out of me, pardon the pun, and i honestly believe it was strawberries from the day before. It turned out to be nothing. I know its hard not knowing, but worrying is not going to do you any good. Continue to believe for the best, and you remain in my prayers.

Rhonda

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