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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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 Posted: Thu Jan 24, 2008 1:15 pm Post subject: Just want to say hello. My symptoms have changed... |
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I'm still waiting to hear something new from my neurologist as to my condition. I see him again early in march. I haven't been posting very often because I've had surgery on my abdomen for a condition so far, unrelated to my brain. I'm fine now, but didn't want to post whilst on morphine patches as I was afraid of what I might say. 
About four days ago, my legs became all..sort of tingly, but not the same.
I noticed it after I had gotten out of the bath the other night.
It began about the middle of my calf down. It has worked it's way up past my knees.
I called my doctor today and am waiting for a call back as to when I can be seen. It actually feels as though I have a mesh of feeling going up my legs..as if i can feel in some spots but not others.
I"m hoping it's just a vitamin deficiency or something, and nothing to do with my brain at all...it's not comforting me any until I find out. Hehe.
Any way...hey everyone.
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 39
Location: New Brunswick, Canada
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| Posted: Thu Jan 24, 2008 3:57 pm Post subject: Just want to say hello. My symptoms have changed... |
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Hey Noid, welcome back. sorry to hear about your sugery on your stomache. hope you feel better soon!
I hope you recieve good news from your neuro. Some of my symptoms have increased as well, but I suppose as the months go by they will keep changing. Ialso see my doctor in March, one on the 5th and the other on the 15th. My MRI is to be in Feb. Crossing my fingers for no growth. The waiting inbetween is the hardest. But we always seem to manage to get through it all some why or another. Take care and nice to see you back, keep me posted on what happens next, if you dont mind that is!
Tam  |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3459
Location: Tennessee
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| Posted: Fri Jan 25, 2008 12:47 am Post subject: Re: Just want to say hello. My symptoms have changed... |
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Hi Noid. I thought I replied to you already, but it did not get posted. I do not think the pain in your legs has anything to do with your brain. It might be a nerve problem or back (spinal cord) problem. I hate that you have to wait until March in order to find out, but I do understand your situation.
I am glad that your surgery went so well.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Fri Jan 25, 2008 10:19 pm Post subject: Re: Just want to say hello. My symptoms have changed... |
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Hey. Wow, we have alot in common Tam. Hey brainman. 
Today I went to see my neurologist. I called my doctors office, and she told me to call the neurologist so that's what I did.
Anyway, I went in and she did the toothpick prick test. It was strange, because I can't feel temprature in some places, and can feel the temprature, but not the prick feeling on some areas. I lost something called a "heel reflex". Since I don't know what it is, I'm not gonna worry about it. We've decided to wait two weeks to see if it goes away on it's own.
The good news..it might not be my head. It may be a pinched nerve. You were probably right brainman. The neurologist said the only thing worrysome was the loss of some reflex. It's not causing me any pain. |
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 39
Location: New Brunswick, Canada
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| Posted: Sat Jan 26, 2008 9:27 am Post subject: Just want to say hello. My symptoms have changed... |
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Hey there Noid,
I agree with Jim on the nerve problem or back (spinal cord) problem , it's very likely it could be a pinched nerve causing your sensations in your legs and back. I have those sensations in my legs so I was sent for an mri and they found that I have 2 slipped disc and 3 pinched nerves. Its really bothersome some days, but with little *carefully chosen*exercise is helping, not 100% but easier for me. Also I have lost a few of those *extra pounds I'm not over weight, but being in shape and a proper weight helps on that. Also the doctor said walking aids it, the better shape you are in the easier it may be for you. I have lost most of my cranial nerve sensation, have none in my eyes, forehead and most of my face, also in my left arm, and starting on my right side now. Mostly everything that's going wrong is on my left as my tumor is on my right, odd how it works.
I don't know if my information is any what helpful for you. Take care and talk soon. Have a great weekend!! |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Sat Jan 26, 2008 3:03 pm Post subject: Re: Just want to say hello. My symptoms have changed... |
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Will do. I noticed I twitch toward the side that my "spot" is on. I decided to stop calling it a glioma for the time being. It's in a bad place to actually sample it and see what it is. My doctors assumed glioma because of it's appearence, and my symptoms. For now, I'll just refer to it as a "spot" or "fuzzball". When they re-scan me in march, then I'll become more educated on it. If i find out it's not cancer, but something else, then I'll come back here and apologize to you guys for posting here. My doctors are quite sure it is, but there are days I have my doubts. Since the sensation is gone in both legs...and not one side, I"m thinking pinched nerve as well. I was laid up for awhile due to the surgery. Perhaps I was in a position that pinched something. Been walking alot to try to make the numbness go away. So far it's still there. Very odd feeling indeed.
Hope you have a good weekend too tammy, and anyone else on this forum. Thank you for helping me calm down tammy and brainman. Sometimes, with me, knowing I have something in my head makes funny symptoms a little scary from time to time. Sorry if i sounded too whiny or upset. I just get scared sometimes. |
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 39
Location: New Brunswick, Canada
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| Posted: Mon Jan 28, 2008 6:06 am Post subject: Just want to say hello. My symptoms have changed... |
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Morning Noid,
Hope you have had a great weekend. There is no need to apologize. We all GET scared at some point or another, if not scared day to day we wouldn't be human if we never felt any emotions. I wish you all the luck and I am thinking of you.
Tam~ |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Thu Jan 31, 2008 2:01 pm Post subject: More changes.... |
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yup...
My leg numbness has progressed up past my hips. Today I'm having trouble walking and my legs are dragging. I can't feel the ground beneathe me, and I can't even tell if my feet are pointing the right way without looking at them. It feels like my stupid body can't keep up with me anymore. I can still make a muscle with my leg, but can't feel myself doing it at all...and now, I can't even tell if I'm walking unless I watch myself do it. I've started tripping and falling...and stuttering alot. I've called my neurologist just a few minutes ago. Now watch this all be over somethig stupid or all "in my head" again. The last time I told her "of course it's all in my head, now fix it" . I meant it jokingly of course.
I found out that my brain isn't run of the mill exactly. There is a lower part of the frontal lobe missing on one side, and large square areas of missing bits. I was born that way. I didn't even know that till my last visit with my neurologist. It's not going to hurt me...just neat to know. So my brain wasn't only a factory defect, but now it's doing weird things on top of that. I didn't know god shopped at k-mart for parts. (joking again of course) I'm happy with what I've got to work with...just wish this bloody numbness would go away..still scaring me a little I guess. |
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ksplat
Moderator
Joined: 26 Apr 2007
Posts: 471
Location: Brisbane, Australia
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| Posted: Thu Jan 31, 2008 7:32 pm Post subject: Re: More changes.... |
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Hi Noid
I'm sorry to hear about the recent changes & the numbness that you are experiencing. The mobility changes & the speech problems are a greater concern & I hope your neurologist starts investigating these changes more seriously. About waiting until March...I cannot imagine how hard this is for you! How do you stay positive with all of this "unkown"?!!! I pray you will get some answers soon on your condition & then you should have more clarity on where you're headed in regards to treatment.
My husband purchased a psychology book from a "op shop" before Christmas & he has been recently reading about the different parts/areas of the brain. What a complex organ!!!
My Bro - Mark - is plodding along OK at the mo & is awaiting his next MRI which will be next Wed - he will get the results on Thurs.
Thinking of you.
Cheers, Aussie Angie.
_________________
Brother has GBMIV
Diagnosed Feb 07
46 Yrs young!
http://cancerforums.net/viewtopic.php?p=19227
"Without Faith We Have Nothing" |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Fri Feb 01, 2008 10:13 pm Post subject: MY SHINY NEW CANE |
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To bludgeon anyone who makes fun of me for my twitch. I haven't used it yet...but I have to admit...i need to keep it with me.
The falling and leg numbness continues. After my visit to the ER yesterday evening for falling and confusion, my neurologist agreed to see me today at 9 am. The best news of all...not only do I have a shiny new weapon...er...cane  , but my MRI was moved up. My first is next week, then four more following. One on my brain...the others on my spine and neck or ...actually, I don't even know what the others are for. I just know I have four MRI appointments at the hospital, and I call to pre-register for them tomorrow. My pupils didn't act right today either. I've dropped off most of my medications..one by one
This is odd for me. I was diagnosed as having asperger syndrome as a child. When I started "seeing sound" 15 years ago, I thought it was part of the syndrome. Funny how life can throw you a curb ball. In the meantime, I'm having an awesome day. No headache, and my legs don't hurt a bit..only numbness, and the occasional fall. For now..i'm gonna chose to shop leaning on a cart..and just fall in public. I'm only 4''11 with my shoes on. Believe it or not...not too many people notice when a small person falls. I'll just keep that cane in my car in case I begin stuttering and someone makes fun of it.
I did have a stutter as a child once. It lasted 2 years. The kids making fun of me for it only lasted 4 hours.
That was back in the days when I had an eyepatch and a knee brace. I found out a knee brace makes a good self defense tool..as this cane will. *JOY  |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3459
Location: Tennessee
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| Posted: Sat Feb 02, 2008 12:31 am Post subject: Re: Just want to say hello. My symptoms have changed... |
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Oh, Noid, I am so so sorry about this further complication to what is already a terrible situation. I do hope the MRIs will help the doctors figure out what is the best treatment for your condition.
Try not to use the can very much... at least not to bludgeon anyone .
As always, you are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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Noid
Experienced user
Joined: 16 Oct 2007
Posts: 57
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| Posted: Thu Feb 14, 2008 10:46 am Post subject: The last of my four MRI's is being done today. |
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I can't wait for them to all be over with..... I've gained some of my walking back, and although my legs are still numb, I'm getting around much better now. My stutter is still here....but not as frequent. My doctor is leaning to me either having had a stroke, or MS, even though he still has not ruled that spot in my head as being a tumor. 
At this point..crazy as it sounds, I'll take any diagnosis, as long as it means me getting treated and helped. The doctors are taking too long...and my medicare is covering less, and less every month it seems. I had to get medicaid to help pay the co-pays that I never had until the past few years....and now....thank you mr. pres...i am once again up for losing my medicaid. The "improved healthcare system" isn't very helpful for people on disability who can't afford the "good insurance" on the plan....grr. Just hoping they fix this before my insurance runs out.
They never take this long to diagnose people in the movies. |
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