Suggestions on regrowth of GBM

ksplat

Dear Sarah
So sorry to hear of your Dad's deterioration. Do you have hospice available to your Dad? They will be able to help with showering/bathing if it's becoming too difficult for you. I feel for you with all your worries & concerns.
I hope your Daughter's 1st birhtday party is a "bright light" in your day on Thursday. Good memories to be had from these moments, especially for you & your Dad.
Did your Dad's Father come to visit? How did this go, smooth sailing I hope!
I am glad too that you are spending time with your Dad. I was able to read bible passages to my Dad too toward the end of his illness. I enjoyed sharing this intimacy with him. It has left some good memories with me.
Thinking of you & prayers for you all.
Cheers, Aussie Angie.
_________________
Brother has GBMIV
Diagnosed Feb 07
46 Yrs young!
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"

brainman

Sarah, I too am very sorry about your father's condition. It is great that you are finding (or trying at least) to overcome your father's losses.

Just one thing to add to what others have already said: Have you actually taken his body temperature? It could be that he is running a fever. The other possibility is that the cancer is affecting the area of the brain that senses his body's temperature. If that is the case, he only "thinks" that he is cold.

My thoughts and prayers are with you and your father.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

SESPARR · Regular Joined: 24 Oct 2007 Posts: 15 Location: COLORADO

First of all, I would like to say thank you so much to all of you who supported me through this difficult time.
So, last Wednesday, I believe it was the 28th of November, I went to dad's to take care of him for the last time. He just looked awful. I could barely get him to move or stay awake or anything. He was shaking, could barely see, wouldn't eat, and was drinking A LOT of water. Was having to get up frequently to the bathroom, but then was in there for like 15 minutes. I figured he was just forgetting why he went. I was really worried about him, and knew that we needed to find hospice quickly, or take him to the hospital. When daddy woke a little, I asked if he would like to go to the hospital, and suprisingly, he said okay. I am so glad he had the strength, and just got up and went out to the car! He could barely get off the couch, but he made it to the car. I was so relieved. They had a room for him when we got there. The doctors decided to check his sugar because of some of the symptoms he was having. It was 1000! They moved him to the ICU so they could put him on an insulin drip. His father arrived from Maryland that day, so he came to visit daddy that night. You should have seen dad's face light up! Very Happy

They had a nice little visit, and got to say their goodbyes. A bunch of family got to see daddy that night. Even my mom, his ex-wife came and when they were alone for a few minutes, daddy woke up, said sorry to her for what had done in the past, and went back to sleep. It seems like everyone got their goodbyes. Thursday, before he went unconcious, He asked for raisins, oranges, and sour candies. It was cute, but those were his last words. Friday morning, His wife, my mom, and I decided to tell daddy That we loved him, and that if he wanted to go home to be with Jesus, that we would be okay. That we would take care of each other, and would never forget him. We also sang to him and hugged him. Even though he was unconcious, tears were coming out of his eyes. Later that day, everybody went to the cafeteria, and I stayed back, I just felt like I shouldn't leave. I just sat by daddy's side and sang to him, he always wanted me to sing to him. I decided on Amazing Grace, because when I was coming out of anesthesia from my heart surgery, he was singing that to me. I was so scared, but when he sang to me, I felt better. As I was singing, he took his last breath. He passed away at 5:27 pm Friday, Nov 30th. Thankfully, the day after my daughter's first birthday. The funeral is this Saturday, and I think it will be beautiful. We picked a cemetary up in the mountains, he would have liked that. This is unlike any cemetary I have ever seen. It also has a wild life refuge, with buffalo, deer, reindeer. It is so beautiful up there. We can plant a tree there for him too. And the chapel is beautiful, It is a huge old barn, with stained glass. and the buffalo come right to the windows. It is rustic, but we know daddy would love it.
I just can't believe he is gone. I am sure it will sink in slowly. I just wish I could have one more hug.
Thanks again everybody.
-sarah

brainman

Sarah, my eyes are full of tears. I am so sorry that your father has died. But what a beautiful, awesome yet painful account of his last hours. I too was with my mother and then years later with my father when the died. I was alone with my father when he died in Sept 2006. I know how painful it must have been for you. But you did the most wonderful thing that a child can do for a dying parent: You walked with your father up to the doorway to the next life and you let him go Crying or Very sad

. I do not know if his body "heard" you singing... but I do have faith that his soul heard your voice and felt your presence with him.

You and your family are in my prayers.

Amazing grace, how sweet the sound...
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

ksplat

Dear Sarah,
What a touching tribute to your Dad & his final days! You are such a beautiful soul with a heart full of so much love, empathy & now sadness. I'm thinking the passing of your Father was full of many beautiful memories (as well as the tragedy) & God's presence!
Your Dad would have been singing in his heart too, along with you.
The setting of his final resting place sounds magnificent & I will be thinking of you on Saturday, whilst you pay your final tribute to your Father.
I have a quote from my Father's funeral booklet of which I would like to share with you
[quote]“His Love—It Came Walking Softly In Silver Sandals And Took Him Gently Away.”
[/quote]
May God bless you & take care of you & your family during this very difficult time.
Angie.
_________________
Brother has GBMIV
Diagnosed Feb 07
46 Yrs young!
http://cancerforums.net/viewtopic.php?p=19227

"Without Faith We Have Nothing"

In

Dearest Sarah,

Your touching tribute to your Dad, had me crying like a baby. With saddness, with grief, with anger, and even a little fondness.

I feel such relief that you were there to sing your Dad, such a peaceful goodbye. I believe he heard you, I believe he shed a tear for you.

I wish that this Saturday will be a celebration of your Dad's life- It sounds like a Amazing Resting spot - for a amazing Man. Maybe a final song of Amazing Grace.....

Take Time with your beautiful Daughter, remember the memories and Be at peace with yourself.
_________________
Thinking of you Inica

*Administrator*

~Nose Cancer~
~Car Accident- Broken Back, Ribs, Spleen
Sternum~
~Continous Cervical Cancer~

My Story-
http://cancerforums.net/viewtopic.php?t=6731

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