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Nasopharyngeal cancer What is this ?

 
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nporter
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Joined: 23 Apr 2007
Posts: 3
Location: Ontario
PostPosted: Mon Apr 23, 2007 3:58 pm    Post subject: Nasopharyngeal cancer Reply with quote
Hi
I am looking to talk to anyone who has gone or going though nasopharyngeal cancer.
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Christmas
New User


Joined: 17 Jun 2005
Posts: 5
PostPosted: Sun Sep 16, 2007 4:39 pm    Post subject: Nasopharyngeal Cancer Reply with quote
Hi, sorry that I didn't see this until now. There's a whole bunch of survivors and advice on the American Cancer Society Survivors discussion board.

I've been treated for nasopharyngeal cancer. What would you like to know? You're probaby almost done with your treatment by now.

Best wishes!
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nporter
New User


Joined: 23 Apr 2007
Posts: 3
Location: Ontario
PostPosted: Sun Sep 16, 2007 5:25 pm    Post subject: Re: Nasopharyngeal Cancer Reply with quote
[quote="Christmas"]Hi, sorry that I didn't see this until now. There's a whole bunch of survivors and advice on the American Cancer Society Survivors discussion board.

I've been treated for nasopharyngeal cancer. What would you like to know? You're probaby almost done with your treatment by now.

Best wishes![/quote]
Hi
Yes i have finished my treatments. I was wondering if anyone who has had nasopharyngeal cancer is dealing with any side effiects. I am having trouble with doctors not believeing me.Any advise. Hope eveything is going well for you. Hope to hear from you soon.
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brainman
Site Admin


Joined: 13 Oct 2005
Posts: 3306
Location: Tennessee
PostPosted: Sun Sep 16, 2007 8:58 pm    Post subject: Re: Nasopharyngeal cancer Reply with quote
Hi nporter,

It seems like few people have enough experience with nasopharyngeal cancer to give you much advice. I just wanted to let you know that you are in my thoughts and prayers.

A couple of questions: 1. What chemotherapy or other treatment did you receive and 2. What side effects are you having?
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Christmas
New User


Joined: 17 Jun 2005
Posts: 5
PostPosted: Mon Sep 17, 2007 12:34 am    Post subject: Nasopharyngeal cancer side effects from treatment Reply with quote
nporter:

I'm surprised that your doctors do not recognize that you will have side effects from radiation and/or chemotherapy. They must not deal with many survivors. I felt that my doctors were great at providing me with treatment, but they did not prepare me for the after effects. Maybe they did not want to forewarn me because I might focus my energies looking for symptons rather than getting well.

The survivors are all different and rates of recovery are different. If you've lost your tastebuds, you will get them back. You are probably experiencing dry mouth, and that too will improve. You will slowly get stronger. I think that about six months after my treatment, I began an exercise program to build up my strength.

I don't want to list my problems because you might not get them at all. What are you experiencing?

OK if I send you an email?
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nporter
New User


Joined: 23 Apr 2007
Posts: 3
Location: Ontario
PostPosted: Mon Sep 17, 2007 7:50 am    Post subject: Re: Nasopharyngeal cancer side effects from treatment Reply with quote
[quote="Christmas"]nporter:
Hi Christmas
Its ok to sent me an email. I would love to talk more with you. My email address is nancydomi@hotmail.com. How long has it been since your last treatment? My has been almost 3 years and I still do not taste much, have trouble swallowing, discomfort in with my feet, sinus infections, ear infections, hearing lose, memory lose, Do you have any of these problems? Hope to hear from you soon.
bye for now
[/quote]
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