Question for the Drs??

Divine1 · Posted: Sat Jan 22, 2005 1:59 pm Post subject: Question for the Drs??

Please Could possibly answer a question for me?
In the last yr I have gone through Lobular BC with a double Mast and on the left I had 19 Lympth nodes removed, all Neg. I had Reconstruction done and I did go through 4 rounds of Chemo, was due for 6 But The Chemo effected my heart. But anyway Iam fine all clear one year later.
My Cancer was brought on by Estogen,,, 12 yrs of it. I had a hyst at the age of 30. I was put on 1.25 and that is what the dr keep me on till I noticed my breast lump.I had many Mammo's and Ultrasounds and ALL failed me too..Another story!
Now my 20yr old daughter ask our same ob-gyn when she when for her check up, about her risks in BC! She is on birth control..
He said to her! and I Quote::::by the time you are in you early 40's you will have BC! I have never in my Life heard such a thing..That made me so angry for him to tell my young daughter that so now she is so scared..
Please can you tell me what you think??
Anyone out there tell me your thoughs..

Thankyou,,
Tammy
_________________
Tammy 43 yrs old ,Wife to Doug for 25 yrs
Mom to two kids, Comp Hyst 1/90
Ant, Post Fus 10/02,,Cerv Fus 8/03 Dx. Lob B/C 12/18/03 19 nod Neg Stge 2, ER Post. Mast lft w/expan, Rt Mast 6/03 imp. 11-03 Imp Finished .7/03 Arimidex 5 yrs.

Muttsmom · Posted: Sat Jan 22, 2005 2:12 pm Post subject: Re: Question for the Drs??

Hi Tammy,
I'll definately let the doctors answer the question but I was just wondering if you had that genetic testing? I'm wondering if that is what he's basing it on. I don't have kids and my niece wouldn't be affected by my dx, since she's my brother's daughter and from last I read, they don't consider that paternal side a factor. I'm going to ask my onco about it when I go next month and if I misunderstood and she could be at a higher risk because of me being dx, then I'm going to check into that test.
Not everyone on hormones gets BC, but it's definately a scary thing now with so many being er and pr +. I personally don't think he could say that with certainty, that she will have it by the time she's 40. If he was, wouldn't he be snatching her off the birth control pills?
I know this has to be so upsetting to you and your daughter, but hang in there until Dr. Leo or Lu can answer your question. I've heard of alot of GYN's that are trying to give HRT to BC survivors that have er/pr+ receptors......go figure.
If you need to talk, e-mail or pm me and I'll give you a call.
Hugs
Nancy
_________________
Nancy
2/14/02 ILC 43 - 5.5 cm 9+/16 nodes
Stage IIIA er/pr+ Her2-
2/02 MRM
FECx6 radsx33
Tamoxifen - Arimidex (chemo induced menopause)
4/03 SM w/bilat. recon.
9/03 expanders removed
5/04 repair reconst. disaster
10/04 Actonel for bone/joint pain from Arimidex
NED - 5 years
3/07 Diabetes
In memory of Kim 12/1/04

Minnlady13 · Posted: Sat Jan 22, 2005 4:23 pm Post subject: Re: Question for the Drs??

Tammy and Nancy, I'll be interested in seeing what our resident docs have to say on this topic, too. But, I would seriously consider looking for a different OB/GYN. I think telling a 20-year-old she will have breast cancer by the time she is 40 is a terrible thing to do. IMHO, I just don't think they can be that certain. Lauri
_________________
Diagnosed 4/11/1996
Lumpectomy, 6 mm tumor
Neg. nodes
ER/PR+
33 rads
Tamoxifen, 5 yrs.
NED

leo · Site Admin Joined: 23 Sep 2004 Posts: 1574

Tammy

What a story ! Certainly your daughter should have been told about this in a different way. There is no way anyone can predict that she or anyone will have breast cancer. Is she at a higher risk ? Yes because her mother has a history of breast cancer. But that does not mean that she will have it. Also, she probably should not be on oral contraceptives due to her higher risk.

best regards,
Leo
_________________
Leonardo F - Webmaster Cancer Forums
Disclaimer: this information is for informational purposes only. It is not medical advice.

hhmv73a · Experienced user Joined: 16 Jan 2005 Posts: 95

i surely do not agree with the answer with the physician of your daughter! i think the risk of breast cancer for a young girl is higher if her mother was diagnosed with breast cancer, but "by the time you are 40 you will..." is not appropriate.
genetic testing is a good recommendation, and she may also consider early mammogram screening.
lobular carcinoma are usually not detected by mammogram because it does not produce calcification, but your daughter may at higher risk for invasive ductal carcinoma too because of the family history.

good luck,

let us know if you have further questions.

regards,

jay

J. Jay Lu, M.D.
Diplomate, American Board of Radiology (Radiation Oncology)

Divine1 · Posted: Tue Jan 25, 2005 10:10 pm Post subject: Dr Jay

Thankyou to all that replied to my Question.
My question Now Is to Dr Jay? What do you mean when you say my daughter has a greater chance developing BC because of Family Histosy? Do you mean Me? I am the Only one in the whole family that has ever had BC. So that does mean she is at a Bigger Risk now, even though my Breast Cancer was brought on by Premarin?
That is what I really don't understand? Why?
If I had a Hyst at a early age, No Cancer, and was put on this, ended up with BC later in the years why does this effect our daughters??
Thankyou for listening to my questions..
Sincerely, Tammy
_________________
Tammy 43 yrs old ,Wife to Doug for 25 yrs
Mom to two kids, Comp Hyst 1/90
Ant, Post Fus 10/02,,Cerv Fus 8/03 Dx. Lob B/C 12/18/03 19 nod Neg Stge 2, ER Post. Mast lft w/expan, Rt Mast 6/03 imp. 11-03 Imp Finished .7/03 Arimidex 5 yrs.

penelopez · Senior User Joined: 11 Oct 2004 Posts: 165

Hi Tammy,

While you are waiting for the doctor to respond, I will share my experience with you.

My mom had postmenopausal breast cancer and she did take HRT for thirty years, due to an early-age hysterectomy for cervical cancer. I know (for sure) that two of my aunts also had postmenopausal breast cancer. I talked to my medical oncologist about this and he said there was not need to do a genetic test because these women were postmenopausal. HOWWEVER.......I talked to Sue at the www.facingourrisk.org site and she said that this is not necesssarily true. Although it does pose a lower risk, there still is a risk. She said the best person to advise you as to whether a genetic test should be done would be a genetic counselor. She said they will give you the facts and not "push" for you to have the test done. It's a good site you and/or your daughter might want to visit.

Also, I think it's sad a doctor would say that to your daughter. Honestly, some of the doctors out there scare me.

Good luck and good thoughts to you and your daughter.

Margie

hhmv73a · Experienced user Joined: 16 Jan 2005 Posts: 95

dear tammy,

one of the risk factors of breast cancer is having breast cancer in ones first degree female relative. if ones mother had breast cancer or sister(s) had breast cancer, the person has the risk factor.

that does not mean the person will or will not have breast cancer, just she has the risk factor.

now, here is the second part of the question. you had a risk factor too, i.e., hormonal therapy. it is possible that you would not have breast cancer if you were not on the hormonal replacement. but so far we do not have much evidence whether HRT caused breast cancer will (or will not) carry the same risk for their female children. we only know that breast cancer in ones family (first degree relative) is a risk factor.

let me know if you have further questions. i think you should not worry too much but your daughter should see her physician to talk about it. again, i don't think there is a guarantee that she will be diagnosed with BC when she is 40.

regards,

jay

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