New to forum - seeking information

cathlbarr · New User Joined: 26 Jun 2007 Posts: 2 Location: Nepean, ON

Hi

I'm searching for information on behalf of my sister in law. She was diagnosed with uterine cancer ( Papillary cerous carcenoma - Stage 1c) late last year. She had her surgery in December which indicated that all the margins were clear, including lymph nodes. However, her tumour had an agressive cancer cell (the doctor called it "clear cell"). She has had 6 rounds of chemotherapy. Now the doctors want her to have radiation therapy - five weeks, five days a week. She has decided not to have this radiation because of all the severe side effects that are mentioned in the literature. Her doctors have become insistent that she has this rediation therapy.

If she continues to choose not to take radiation, what are her chances of re-occurence? If the cancer does re-appear, what choices does she have to fight this new cancer?

Thanks for your help.
Catherine

brainman

The truthful answer to your questions is: I don't really know and I don't think anyone else does either.

Her cancer is a relatively low grade cancer. However, with the aggressive cells present, aggressive treatment is understandable. Of course, any treatment is ultimately your sister-in-law's choice. I assume that they plan to irradiate the surgery area... lower abdomen? I am not sure what all the risks are in that. Certainly, her intestines and to some degree kidneys and liver will receive radiation. However, radiologist's are very good in minimizing this collateral radiation damage. Another course of action is for your sister-in-law to get a second opinion.

The danger is that if she does have a recurrence, it can metastasize to any number of other organs making it much more difficult to treat... not impossible, just more difficult.

I know this must be a difficult decision and hopefully others with more experience with uterine cancer will reply. I will keep you and your sister-in-law in me thoughts and prayers. Keep us informed.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

cathlbarr · New User Joined: 26 Jun 2007 Posts: 2 Location: Nepean, ON

Hello
My sister-in-law and I went to see her radiologist yesterday to go over some questions we had about radiation. She is still determined not to have radiation even though the radialogist told her that if the cancer returns, there is not much that can be done to fight the re-occurence.

I would like to hear from other women who have had radiation therapy for their uterine cancer. According to the radialogist, severe side effects from radiation therapy are uncommon.

Thanks for your help.

Catherine

poppy · New User Joined: 21 Jul 2007 Posts: 2

Hi
I had treatment for 1C uterine cancer 8 months ago I had 6 weeks of radiation no chemo

during the radiation I had stomach ache and cramps but over the counter pills worked
I had about 2 weeks of pain when using my bladder but ural sachetels helped
constant diareoha for 4 months
sounds bad but not really I was able to work all the way through I did feel so so so tired near the end but I was still able to drive my self in every day and then go to work look after my family
Im 36 and looking forward
I now find that I have some hip lower leg pain a bit like arthritis but it doesnt bother me and I have been told it will go.

So I guess Iam tring so say that its really not that bad
wishing your sister inlaw all the best

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