momof4angels
New User
Joined: 11 Apr 2007
Posts: 4
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 Posted: Thu Apr 12, 2007 8:48 pm Post subject: Waiting for diagnosis? |
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How do you deal?
I dunno that i am going to even get the dreaded cancer diagnosis but its looking more and more like that, and I'm getting vague answers from my docs office over the phone... I hate that...
Basically i went to my docs on Mar 28th complaining about my headaches getting worse and more frequent (normal 1 migraine a month changing to 2-3 times a week at least), dizziness, memory problems and such (there's more i just don't wanna get into it all)... Doc decides to do a CT scan, and put me on Topamax, doesn't think there is anything major, so plans to see me back in 2 months, and if the Topamax is not working he will refer me to a Neuro then....
I had my Head CT with contrast that friday, on Tuesday his office called me, informed me the results were abnormal and i needed to see a neuro, and have an MRI. They Scheduled the MRI for that Monday, and my Neuro appt for the 19th (next week)... Now yesterday i get a phone call from my docs office asking me if i have spoken with the Neuro, I am like no, they tell me they are going to call me back with an appointment, i tell her i have an appointment with them already from when my CT scan came back abnormal, she asks when it is, i tell her, she tells me that they may be getting back with me...
OK freak me out, no mention of my MRI results though...
So i wait all day today to see if i hear anything, and decided about 4pm to call for my MRI results, because i don't want to wait anymore. Well she tells me, reluctantly and being very careful about what she is saying that "there is a low-lying lesion near the basal ganglia" and that is it. And mentioned that they should have called me with an appointment with the neuro again, i just told her i had one already from the abnormal CT scan... So basically i still know nothing, and im getting irritated that no one wants to tell me anything. I am trying to understand the whole, not wanting to give a diagnosis over the phone, and docs wanting to be able to answer questions and such, but this is frustrating as all get out....
How did everyone deal when they were going through the motions of getting a diagnosis?
Deena |
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csweens
Regular
Joined: 02 Apr 2007
Posts: 29
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| Posted: Fri Apr 13, 2007 12:42 pm Post subject: Re: Waiting for diagnosis? |
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Hi -
It's the most frustrating time of your life - I only know from my experience with my Dad - getting tests scheduled, doctors appointments set and changed, the whole nine yards - it takes a toll on you - try to take one minute at a time if you have to to get through it and know that it will work out - it's extremely hard and thank goodness my aim sucks or I would have smashed my cell phone at least a dozen times after speaking with yet another person to try and move my Dad's diagnose and now his treatment (he has stage IV liver cancer) - from diagnoses to his first treatment took 8 weeks which I think it horrible - because you are depending on getting doctors and doctors offices to get together to work as a "team" -
Don't give up - keep calling if you have to - the squeaky wheel gets the oil so to speak - try your best not to yell at anyone - that really doesn't help even tho you are frustrated -
You're in my thoughts and prayers - be sure to post again as often as you need to to get your frustrations out and to have support - there are many wonderful people on this forum that are ready to listen - 
Cindy |
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momof4angels
New User
Joined: 11 Apr 2007
Posts: 4
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| Posted: Fri Apr 13, 2007 1:19 pm Post subject: Re: Waiting for diagnosis? |
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Thanks for the reply!!
I did put a call into the neurologist office, to move up my appointment. They were very understandable, and gave me the next available. Only got me in 2 days sooner, but that is two days less i have to wait to find out what is going on!
So only 4 days till my appointment now, instead of 6! |
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