Temodal (chemo oral tablet)

vlahos · New User Joined: 15 Mar 2007 Posts: 3

hI I am a 37 yr old female. Smile

on June 17/2005 I had a unexplained grand mal seziure.I was on my hoonymoon on a quuensland island.We are now down the track,I still have simple partial seziures &absence seizures daliyand radonmly complex partial,drop down & grand mal seizures.After a biopsy on the right side of my brain,I was diagnoised with gliometosis cerabri.Before this I had no medical history,and led a very healthly life.

Im taking temodal tablets as chemotherpy for 5days out of a 1 month.4 the last 5months

Id like to hear from anyone else on the same chemo drug or has a similar brain tumor......

Think positive...........
Vlahos

Vee Smith · Moderator Joined: 12 Feb 2006 Posts: 821 Location: UK

Hello, Vlahos - can I suggest you post this in the Brain Cancer Forum - you will be more likely to find someone there.

Julie · New User Joined: 02 Apr 2007 Posts: 3 Location: UK

Hi Vlahos
My husband is 37 and has just started taken Temodal (same regime as you) for a brain tumour. He has been told sucess rate is 60-70% for his type of tumour, I believe it seems to work best for gliomas. Hang in there and stay positive, a friend recently told us he had read that you need to picture in your mind the drug attacting the tumour cells (like space invaders) apparantly it also can help if you actually play attacking type games, who knows? It might make you chuckle if nothing else!
Take care of yourself (I have also posted a comment in the brain cancer forum which you may like to read).
Julie

vlahos · New User Joined: 15 Mar 2007 Posts: 3

This gives me a hope for the future.Am usally a very positive person and have taken the natural approach which is supporting the drugs I take.

what some of his side effects when on temodal?

Julie · New User Joined: 02 Apr 2007 Posts: 3 Location: UK

Well I am no expert and my husband has only completed one month but so far he has had very little in the way of side effects. They say nausea is common although he has not needed to take his anti nausea medication they also mention tiredness but he tends to have that anyway through taking the anti-convulsants. Other than that side effects could cause fertility issues as you are probably aware so I sent him off to the sperm bank just to be on the safe side!!! Hows that for optimism. Feel free to email me if I can answer any further queries you might have.
Julie

mistymoon · Posted: Sun Apr 15, 2007 9:47 am Post subject: Re: Temodal (chemo oral tablet)

Hi, my husband is 39 and this is second time to rid himself of a brain tumor. First time was 7 years ago, surgery, rad, & chemo. This time just temodal. He has finished his 2nd treatment and visits Dr again April 30. His Dr will not do another MRI until he has had 3 treatments.

Dan is extremely tired, but has been for 7 years due to seizure meds and working full time for 4 yeas as Truck Mechanic until Feb of this year.

He had no reactions at all the first time around, 2nd time he vomited the next morning after his first dose the night before. Dan also takes 8mg of Novo-Ondansetron a 1/2 hour before the Temodal to prevent vomiting and nausea. Seems to be working other than that one time. Dan also does not take on an empty stomache. He eats a little something when he takes the Novo-Ondansetron, which he forgot to eat when he took his first dose the 2nd time, but has eaten the next 4 nights and was fine, could be coincidence!!

I wish you well and God Bless.
_________________
Nat

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