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Reoccuring NHL, need advice What is this ?

 
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Meek
New User


Joined: 16 Mar 2007
Posts: 1
PostPosted: Fri Mar 16, 2007 7:55 am    Post subject: Reoccuring NHL, need advice Reply with quote
Hi Im new to the forum was wondering if I could get some info about my nan if possible.
She had stem cells done a couple of years ago things were going really well. Then a month or so ago she went completely down hill, no energy went off her food, has the sweats.
Found out a couple of days ago the cancer is back, went in to visit her tonight she was drifting in and out of sleeping. She looked totally exhausted. Also look dazed and some what confused about things.
The drs cant tell us much at all, just wondering what the outcome looks like??
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anjou
Experienced user


Joined: 01 Jul 2005
Posts: 65
PostPosted: Fri Mar 16, 2007 9:17 am    Post subject: Re: Reoccuring NHL, need advice Reply with quote
Hi there--
Some thoughts, especially if you know the exact type of lymphoma.

1 Call either the lymphoma research foundation or the Leukemia and Lymphoma Society they have will help you locate trials suitable to the situation

2) Call 1 800 4 cancer a specialist there will do the same-- I did the same when my Mother had a recurrence of her cancer, and they sent a packet of info

3) Seek out a lymphoma specialist at a major cancer center for a second opinion, if she is not already being seen at an NCI center.

4) There is a great deal of info at www.lymphomation.org
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Follicular lymphoma grade 3, stage 2 dx 9/99 CHOP x 3 3600 rads rituxan x4
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