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kimmi
New User
Joined: 10 Jan 2007
Posts: 2
Location: manchester, uk
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 Posted: Wed Jan 10, 2007 4:02 pm Post subject: keeping positive |
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| i'm 19 and my dad got diagnosed with a GBM in novemeber!!! when they told me and my family that even with tretment he would not live long i thought my world had ended!!! i didnt know how we was going to get through it or live everyday normal but surprisingly in a way as a family we have never been happier, i think its how people survive through something this terrible, by pulling together when it counts and my dad is being the strongest out of us all!!! my dad had surgery in november and is now half way through his radiotherapy and chemo treatment and i'm hoping that a strong positive attitude might just help it along!!! even though i've never been more scared in my life!!! i find it difficult to talk to people about it and everyone thinks i'm being really strong, they dont really see that its tearing me apart!!! thats why i came on this site and thught i would post a message, as even though i dont know any of you's i feel like we understand each other in way, and hearing other peoples experiences, some even worse than my families, makes me realise that people can be and are strong enough to get through something like this!!! so thank you and my thoughts are with all of you and your families!!! and i'm sure i'll become a regular on this site soon!!! |
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michelesmith
Experienced user
Joined: 28 Oct 2005
Posts: 72
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| Posted: Thu Jan 11, 2007 10:47 am Post subject: Re: keeping positive |
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Kimmi,
Welcome to the group. I hate the reason you have found us, but I'm glad that you are here. I think you will find all of us to be pretty supportive. When you don't feel like anyone else can possibly relate to you, just come here and feel free to say and be exactly how you want to be. We all know that feeling of having to "look strong" and be what we need to be in front of others and on the inside you feel like your world is spinning into chaos. I hope we are able to offer you support and whatever else we can for you.
Michele
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Michele |
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brunette
Experienced user
Joined: 27 Oct 2006
Posts: 51
Location: UK
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| Posted: Thu Jan 11, 2007 11:25 am Post subject: Re: keeping positive |
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Hi Kimmi, welcome to the site.
I know what you mean about falling apart. Ppl think Im being so tough but inside Im a wreck. My mum has a GBM diagnosed in August. She couldnt have surgery, has had 6 weeks radiotherapy but is getting worse by the week. Its a nightmare.
You will find everyone on this site is very supportive. Its comforting to know that youre not alone and ppl understand. I wish you and your family all the best. Love and hugs xxxx Jen. |
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kimmi
New User
Joined: 10 Jan 2007
Posts: 2
Location: manchester, uk
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| Posted: Thu Jan 11, 2007 5:36 pm Post subject: Re: keeping positive |
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thank you both so much for your kind words!!! its feels like something of a relief to finally feel like i dont have to act the part anymore! i'm just getting so sick of it all, i have very supportive friends who have all been great, taking me out, keeping me busy just to take my mind off it! but sometimes....all i wanna do is scream and shout at someone, rant a little, be pissed off and angry but i feel like i cant do that with any of them, it feels like that would be selfish somehow, plus theres only so many comforting words my friends have for me! thats why i want to offer my support to all of you's as well, coz we all must know how frustrating it is to want to scream out loud at the wrongness of it all but not feeling able to! so heres my first contribution........arrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr!!!!
another day of chemo and radiotherapy for my dad today, seems to be going quite well, he's still finding co-ordination, his balance and so on quite diffficult but maybes that coz of the decrease in his steriods! he's starting losing his hair too which is a bit of a blow, as its hard seeing him looking completely different to how he used too. i'm struggling to be around him for too long too now, and its so selfish and i feel so guilty, and angry that i cant just pull myself together, it just breaks my heart coz sometimes when i look at him doing simple stuff, such as trying to eat his dinner and he struggles i have to leave the room coz i cant let him see how much it upsets me, he doesnt need that too!! its not like he's a different person or anything, he's still my amazing dad but its hard to see him being weakened by this, and i know how much he hates it!
anyway enough of my ranting, it just feels good to get things off my chest!!
love to you all, my thoughs are with you! keep updating and letting me know how all of you are getting along....and if anyone feels like screaming feel free, it makes u feel better if only for a second! keep positive and strong!
kimmi xxxx |
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bc
Experienced user
Joined: 11 May 2006
Posts: 54
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| Posted: Thu Jan 11, 2007 7:22 pm Post subject: Re: keeping positive |
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Kimmi,
Hello - I have spent the past year with GBM in my family. My dad passed away nov 2006, after 11 months. We were very positive and my dad had a great attitude which helped him to manage this disease.
Steroids are very critical to the quality of life your dad will have. I am sure you have read many messages on this forum, it was truly very helpful to me.
The messages from those before me are great and will help you. Do spend quality time with your dad, do things, go out to dinner, enjoy his company. You never know when your father will not be around and you don't have to have any regrets about not spending enough time with him.
I take that with me, that we spent 10 quality months with my dad and I am glad I did.
Hopefully your father will have many more years of life, so enjoy his company and all the time you spend with him.
I am wishing you the best.
BC |
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Kris
Experienced user
Joined: 23 Jul 2006
Posts: 76
Location: Geneva, Switzerland
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| Posted: Sun Jan 14, 2007 12:24 pm Post subject: Re: keeping positive |
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Dear Kimmi,
I also offer you all the support I can give... my Mum was diagnosed with GBM in late July 06 and passed away in November 06... her GBM was inoperable and she opted for palliative care only, no chamo, no radio.
As bc says, steroids can really be helpful in reducing swelling and inflammation in the brain tissue, thans to steroids and pain killers, Mum had a few reasonably acceptable months to live with all our family around her.
Be strong, and come here for support any time you need. We are all here for you.
All my love,
Kris |
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Kris
Experienced user
Joined: 23 Jul 2006
Posts: 76
Location: Geneva, Switzerland
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| Posted: Sun Jan 14, 2007 12:33 pm Post subject: Avemar |
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Kimmi,
Here's the site of a medical nutriment for cancer patients for complementing treatment after and during radio/chemo.
http://www.avemar.com/index.php
I'm Hungarian so I'm quite proud of this Hungarian product which has more and more science behind.
This is not a cure for cancer, but helps in diminishing the negative effects of radio and chemotherapy and boost the immune system.
Keep positive!
Kris |
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