Does anyone have cancer in Remission/NED

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

When we were told my husband' stage 1V cancer had gone, we went on holiday to get away and have a change. Feeling overwhelmed with joy and to have a chance to start our life all over again, I am still a nervous wreck!
I now wonder, what tablet was it? Abricot Kernals? Vitamin C? Vitamin A? Enzyme? Chemo? Prayer? Benny Hinn? Perhaps All?
Today my husband has had an Xray for control, he will be having a scan on the 8th April, the Xray today is even showing that his lung is looking even better than the last Xray. He is still taking the kernals/vitamins but it is still nerve wrecking, I am terrified it might come back. It seems now incrediable that a 26cm tumour in the left, spread to the right lung and bone, has just vannished. Is there anyone having had this happen to them as my husbands oncologist and family doctor is astonished with the scan results in January. Now i have relaxed, had a holiday i am stressing over the IFs and I feel, I am walking on dynamite. It would be good to hear from others with a simular situation. Of course the great news is right now its gone but also if we knew what we did correctly, could it not help others?
God Bless everyone on this site,

pjean · Regular Joined: 12 Mar 2007 Posts: 22 Location: minnesota

Take each day as it comes,but you've been blessed,its hard to say if its a miracle or just luck? or are they they same.Was he combining his chemo with alternative,herbs or something? I want to know maybe I will try it out on my fiance. Dont take anything for granted,dont let your nerves take over(but easier said than done,hopefully I will be there some day)

Vee Smith · Moderator Joined: 12 Feb 2006 Posts: 648 Location: UK

I agree - you have to live life now.

If he is clear, rejoice in that and don't worry about what it was that did the job. Keep in mind that maintaining the immune system is now important, and that the less stress and worry you both have over his health, the more likely he is to remain well.

There are many who are virulently anti chemo, but it does have a role and does work, even if it is unpleasant in itself. Any substance taken in strong dosage can be poisonous - apricot kernels contain cyanide and if taken wrongly can kill. Whatever complementary or alternative substances he takes, make sure you get professional advice and that his medical team are fully aware of what you are doing.

I hope all goes well for you both from now on.

brainman

I agree with both pjean and Vee. I just have one comment... when it comes to cancer, I do not use the word "cure". It can be controlled; it can go into a dormant state; it can go into remission; or, like mine, it can go into a "no evidence of disease" (NED) state, but not cured. I may never have a recurrence again. But until the day I die, I am still at risk of a recurrence. Just ask the health or life insurance people or any potential employers Sad

.

I know the following comment is out for place but it is appropriate: Don't you just hate insurance commercials that say "no medical examination is needed" only to get the application form and there it is.... the dreaded question... "Have you ever had cancer....?"
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

Pjean, you are so right! usualy I am positive person with lots of energy! I have been recently diagnosed with emphysema and have other health problems on-top. Since being diagnosed I started to worry quietly to myself what would happen to my husband if he survived me, the reverse of the previous year.
My husband is from India, we are on our own, looking after each other, he looks after me mentaly and I look after him physically. We know each others needs without talking and he is my only friend, other than God himself. But! I am getting there, I have been busy making plans somehow we are going to travel and see Europe and hopefully Australia amongst popping over to India next month, already arranged.
MY husband was given Carboplatin and Paclitaxal for one day every 3weeks 3x3=1course (He had 3 courses) He had 1 time radiopherapy for bone cancer. (The hospital operated and drained the fluid and stuck the lining of the lung to stop the fluid comming back.
We found out about the B17 (Apricot Kernals) from the internet, my husband and I take them. He takes them crushed with honey 3/4 times per day. He takes an enzyme and vitamin C also a multivitamin and B15. My husband last September/November came out of hospital on 600mg slow acting morphine, now he is on 40mg. I think the vitamins possible help with pain control? May God Bless you both, you are in my prayers.

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

Thankyou Vee for you comments and you are perfectly right about stress. Stress itself is a killer! Live today as tomorrow may never come, I agree!
I hope you dont mind me asking you as you obviously know alot more about medicine than I. Could you tell us, have you ever heard of anyone being poisioned by this cyanide in the Abricot Kernal? I have searched the internet and cannot find any proof on this, could you confirm anything? I have just looked into a site www.apricotsfromgod.info, obviously there are many sites regarding this, but I did read somewhere that only when it came into contact with a cancer cell, then it turns to a cyanide and kills the cell?
My husband did have Chemopherapy along side natural therapy and we asked the Doctor if the vitamins were a problem to the Chemopherapy and we were told not. I say one very good thing about all this, whether connected or not, everyone had colds/flue' and normal bugs this winter and both myself and husband did not even get a snuffle!
Take Care with Gods Blessing

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

Thankyou Jim for your comments. A very good comment I dare say. Its funny but when i was searching the internet, I would always use somewhere the word cure.... Is there a cure and so-on! Anyhow thanks for that snippet, my husband is "no evidence of disease" (NED)
Could you tell me how often you were checked, whether it is generally 2 monthly/6 monthly?
Thanks, my prayers are with you.

pbj11 · Site Admin Joined: 12 May 2007 Posts: 871

Laetrile was all the rage several decades ago. It was supposed to be the "miracle" drug. This was produced from the apricot seed. It's not a good thing and has not stood up to any serious studies. Some clinics in Mexico still utilize it, which speaks volumes to me.

Most oncologists advise against any strong anti-oxidant supplements during many of the chemo regimens as they conflict and possibly undercut the chemo's effectiveness.

Memorial Sloan Kettering has a great site for supplements and herbs at:
http://www.mskcc.org/mskcc/html/11570.cfm

Here is their warning about Laetrile:
Warnings
Amygdalin is not approved for use in the United States.
Pharmaceutical evaluation of the injectable formulation showed pyrogen and microbial contamination, and both injectable and oral dosage forms did not contain labeled amount of amygdalin.

Go to the site and look under Laetrile for more info on its history.

I'm sure happy to know someone is winning against this disease! Good for your hubby!
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.

Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0

Vee Smith · Moderator Joined: 12 Feb 2006 Posts: 648 Location: UK

Hi, Lois.

The problem with sites promoting substances such as apricot kernels is that they only provide the positive information, and do not give you a balanced view with the dangers fully identified. It is the same for any herbal remedies - the marketing sites promote but do not define or provide warnings. You will naturally not find much about the ill-effects. If your husband is keeping to the limited number advised and there are no side-effects, keep on doing what you are doing. It is not harming, even if there is no clear evidence of helping. It is also good that his oncologist is prepared to accept the value of complementary supplements.

However, as pbj11 points out, laetrile was promoted as a "miracle cure", but it is not available through properly reputable clinics; certainly in Europe there is much caution about it.

On the other hand, there is some clinical evidence for the effects of mistletoe, and it is used in Germany and Britain as an adjunct to treatment. It too is highly toxic unless properly used.

It is good that your husband is NED - long may it continue - and I hope your own health problems are soon under control.

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

Thanks for your comments on the kernals. Small doses perhaps works better than large?
I agree, when some-one is promoting the substance they are selling, we will only hear the good side.
I never knew of anyone having chemopherapy before, so I was ignorant when I was told that you could die from chemopherapy as its also a poison? I guess whatever it takes to kill the "C" cell' we natually try! We have so many choices now, don't we? Even "Misletoe", thats quiet interesting because is'nt certain chemo from a bark of a tree? This is such a terrible illness. I pray for every-one on this site and soon hopefully one day we can take the terminal away and call it a chronic illness. God Bless Lois

Traffic Warden

Hi koikkeril,
just read these posts, fantastic stuff Very Happy

, tis' what we're all fighting for, don't think can comment on what foods or vits help, i try to continue to eat healthily through my treatments and can only hope of an eventual ned Very Happy

.... fab story though ... sorry for not seeing before as going through the mill myself Very Happy

Hope things coptinue well TW

koikkeril · Senior User Joined: 29 Jul 2007 Posts: 198

Thanks Traffic Warden, so sorry you are going through the mill yourself. I will pray for you and hopefully, we will see a NED, from you also! It goes to show, it can be done. My husband was told he would only live a few months as it, was non operable. He then went back home to France. His Dr. has recently told us he never expected my husband to live as long as 12 weeks. He was so poorly and look now, there's nothing there? My husband has an attitude of not caring and leaves everything in the hands of God. God Bless you too. He took all treatment that the Oncologist handed to him, plus the vits! He never got a cold through the winter, not even a cough/sore throat or anything. I think personally vits are good for the backup? Take care now and let us know how you are doing as treatment goes on.

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