Cancer Forums - Leukemia Forum

lilBird · New User Joined: 17 Sep 2006 Posts: 1

Hello,

I have a friend who is 17 years old and she was diagnosed with CML.
Before she found out she was my best friend, but now she doesnt want to talk to me anymore, and doesnt wanna tell me whats going on.
Can someone pls tell me what stages she has to go through? Is CML painful? Can she use her own bone marrow for the transplant? Does the transplant leave any scars? How long does it take and how is it done? I have read so much about it on the internet, but there is nothing about how people feel when they go through the process.
I am so worried about her... isnt that a time where she needs her friends most? I really want to help her, but I don't know how.

Can someone, who has gone through CML tell me what the different stages are like? I would really like to know to be able to help and understand my friend.

Thanks,
lilBird

brainman · Posted: Wed Sep 27, 2006 9:18 pm Post subject: Re: CML

Hi lilBird,

As moderator, I moved your post to the Leukemia forum because you might get better information here.

I have no information about juvenile onset of CML. However, I can give you some general information. Your friend’s reaction to your concern is not unusual. Many people tend to withdraw from their friends when they find out they have a cancer. It is a grief response. Whether your friend will or will not die is irrelevant. The fact is, she has the big “C”! Life is going to change for her regardless of how long she still has. Be patient and caring towards your friend. Don’t pump her for information. She is still learning about CML herself… and in a way that you and I can never truly understand. If you want to learn more about CML, the internet is rich with information. But always remind yourself that your friend is not just a diagnosis, prognosis, and treatment plan. She is a flesh and blood person who is facing a major, chronic illness.

I will keep you and your friend in my prayers and thoughts.
_________________
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Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
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angie07 · New User Joined: 12 Jan 2007 Posts: 2

Hi lilBird,

I was diagnosed with CML a week ago, and of course I was in shock and I still am.

My best friend lives long way from me and what I did is I wrote her an email telling about my condition. She didnt believe me she had replied with some very funny comments telling me that Im just so tensed so I start to imagine things. At the same time she had called my sister asking her about me, and I havent told my mother and sister yet. Cause Im married and I live with my husband in another country.

I got very upset with my friend and I called her on the phone yelling at her cause she acoording to me hasnt done the best things as a friend, in stead of she supporting me she was making fun of me.

I didnt wanted to talk to her, but she kept calling me so I had to tell her the situation after beeing at the doctor.

But Im still hurt she didnt understand me at the first place.

My advice for you would be, to be close to her whenever she will need you, dont push too hard to talk to her. I can imagine what she is going through cause Im in the same situation. She will call you one day, be there for her.

As for the pain, it depends really, you cant put your finger on something concretelly. I have bone pain in my leg, but it goes away with pain killer.

Its not the pain, BUT the shock she is going through.

I hope I helped you to understand your friend.

All the best,
angie07

Ridlin · New User Joined: 29 Jan 2007 Posts: 1 Location: michigian

My sister did the same thing. She just has nothing good to say because of what she's going through.

Once she recovers try again.
_________________
www.KristyRecovers.com

angie07 · New User Joined: 12 Jan 2007 Posts: 2

Dear Ridlin,

I just saw the website that you have made for your sister! SHe is very lucky to have you as a family! It really made me cry cause I miss my mother and sister. Now she is my only hope for the bone marrow transplant! We still dont know whether she is a match! But I'll pray to God that she is.

I hope your sister is fine and that she is has her life back.

All the best,

Angie

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