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leighzi
New User
Joined: 16 Jul 2006
Posts: 4
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 Posted: Sun Jul 16, 2006 1:46 am Post subject: last days from cholanngiocarcinoma, seeks advice |
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My father was diagnosed with cholangiocarcinoma 4 weeks ago at the age of 55. The doctors told us we found out too late and there was nothing more to do, except keep him comfortable and do whatever he wanted to.
Its been a week he's been home on hospice. Yesterday the nurse took him off his tpn(total parenteral nutrition) because he has not had a bowel movement in 2 weeks. Therefore whatever goes in he will vomit back out.
Taking him off the tpn is the right thing to do but very hard to watch as a family member, everyday he gets weaker and skinnier plus the fact that he has not eaten anthing for about 3 weeks.
According to the nurse he has about a month left give or take, i am slowly watching him die. This is one of the worst ways to experience an on coming death of a family member.
We have tried fleet enema and ducolax suppository for his bowel. None have worked, if we can at least get his bowel movements he can be a lot more comfortable and will be able to eat and have some strength to enjoy his last days instead of laying in bed all day.If you are aware of this cancer or have good knowledge of bowels please take the time to respond and give my loving father a chance to enjoy his last days with my family. The only problem is the cancer may have grown around his bowel tube an may have pinched it shut, in that case there is nothing we can do. Anything will help even your prayers, thank you |
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reenie
Experienced user
Joined: 26 May 2006
Posts: 57
Location: vrginia
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| Posted: Mon Jul 17, 2006 2:30 pm Post subject: Re: last days from cholanngiocarcinoma, seeks advice |
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| So sorry. I don't have any info to offer- just wanted you to know someone was listening. You asked for prayers and that is about all I have to offer. Wishing you peace, Reenie |
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leighzi
New User
Joined: 16 Jul 2006
Posts: 4
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| Posted: Tue Jul 18, 2006 1:35 am Post subject: thank you renee |
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| thank you renee, that is one of the best thing a person can offer at a time like this, and i wish and pray for good health for your family! |
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freeio
Senior User
Joined: 20 Dec 2004
Posts: 116
Location: Guntersville, Alabama
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| Posted: Tue Jul 18, 2006 8:47 am Post subject: They put me on Glycolax for this |
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I am in a position not too far from that of your father. The profound constipation (caused by the pain killers) is a very real problem. My GI doctor prescribed Glycolax for this, and it does help considerably. It works by keeping the water from all being pulled out of the intestine, making the contents wetter and easier to get going. It is not a perfect solution, but it is much less painful to deal with than the ducolax suppositories and similar, which are really harsh.
I hope this helps.
Cheers!
Marty
_________________
-------------------------------------------------
whipple procedure, Oct. 21, 2004
28 days of radiation
56 days of Chemo using Xeloda
diagnosed as progressive recurrent pancreatic adenocarcinoma (Stage IV) Jun. 20, 2006
was treated with gemcitabine, oxaliplatin, and tarceva, which all failed.
Cancer blog: http://diehlmartin.com/cancer.html |
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leighzi
New User
Joined: 16 Jul 2006
Posts: 4
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| Posted: Wed Jul 19, 2006 7:02 pm Post subject: Re: last days from cholanngiocarcinoma, seeks advice |
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| thanks for the help, but my fahter has passed yesterday night, i really appreciate and thank you for the help. i hope you stay strong and fight this an i will keep you in my prayers |
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