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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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 Posted: Sat May 09, 2009 7:23 am Post subject: Re: My story NHL |
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Ride Safe!!!
God Bless...Don
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Sat May 09, 2009 7:24 am Post subject: Re: My story NHL |
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You've had spring for a while - we're just getting started.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops  |
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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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| Posted: Mon May 11, 2009 9:44 am Post subject: Re: My story NHL |
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ChemoMan: Yes, the baseball players scandals involve the use of steroids. It is a shame. These are the folks that are the "image heros" for our kids and grandkids and reflect the values of society. I am of the mind that when a player signs a professional contract, they should agree that their behavior, on and off the "field", should be just that: professional. All too often we see bad behavior such as drug use, out of control tempers, fighting and other immoral behavior. Our hockey players are like that; every game has a few brawls, which in my opinion the participants should be terminated for good. The reason: Unprofessional Conduct. When I was growing up, I remember a big "stink" when Johnny Unitas, the hero quarterback for the Baltimore Colts, decided to let his hair grow out a bit (he wore a crew cut). Parents were upset because he set the example for the kids.
Singledad: What kind of a bike do you have? Mine is a '06 Harley Super Glide. Because of my neck injury, I installed an "MT Voyager Kit", which are glorified training wheels. Last week I took them off as my strength has improved greatly. It was great to be on two wheels again; it is hard to ride with the outrigger wheels as you can't lean into the curves. I am glad to see you riding while undergoing R-CHOP at the same time...be careful!
I am starting R-CVP on the 18th. After much consternation, I decided to save the heavy stuff for later when I really may need it. After going over those Pod Casts, I concluded that too much of that "stuff that starts with a d'" in CHOP could have long term effects and also leave no options if the Indolent NHL transforms to an aggressive form.
Take care...keep in touch...Ride Safe...Don B
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Mon May 11, 2009 8:12 pm Post subject: Re: My story NHL |
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Gave up my dual sport ( I've always ridden intermediates ) Kawi 650KLR
http://www.motorcycledaily.com/15december02kawasakiklr650.html
as my hands were getting sore shifting and clutching ( that's all gone thanks to the CHOP-R - ) 
Switched to a Honda Silverwing and just love it. Took a bit to get used to as this review notes but it can carry 4 big bags of groceries under the seat, top out at 100 mpH plus and ride dry in the rain.
http://onewheeldrive.net/index.php?option=content&task=view&id=588&Itemid=126
Amazing vehicle and $10 for a fill up for a lot of riding - the 550 just sips gas.
http://www.totalmotorcycle.com/photos/2006models/2006models-Honda-SilverWingABS-SilverWing.htm
I'll rarely take the van anywhere for the next 6 months.
No shifting or foot braking took some time to adjust to and the small wheels a bit as well.
ABS are to die for as is the storage. Very nice stadium seating for rear passenger.
If I was touring I'd likely opt for a 3rd party seat as I find after 3 hours it's a bit too stiff.
The feet forward takes getting used to.
I'm really looking forward to a PHEV version of it. Vectrix has one now
http://www.vectrix.com/
but I'll wait a couple years. Can't wait to ride at night on the back roads with an electric.
I'm careful with my energy - I make sure my loops out have a short cut back and I have no time pressures so I can bail at any point and just hang out somewhere if my energy goes.
My worst period is 4 pm to 7.30 pm - I just retire period. I can literally fall asleep at my desk.
Good energy then from 8 pm to about 2 am. ( that was my normal pattern anyway ) - sleep for about 5 hours then 7 to 2 is fine......I LOVE napping and have done it regularly all my life.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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| Posted: Tue May 12, 2009 5:50 am Post subject: Re: My story NHL |
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Wow, those look like some nice "scooters". I know several people who own Gold Wings and they love them. I've always like the Harleys, but to each his own.
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Wed May 13, 2009 12:38 am Post subject: Re: My story NHL |
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Yeah these are big bike feel but at 500 lbs and the weight low are much more amenable around town yet will still tour.
The damn Burgman windshield is power adjust 
Too many toys for me - I'm 5 9 so the Honda was perfect. The Burgman might be a bit nicer for a taller rider.
The seat back is adjustable on the Honda.
550 cc insurance is cheap too and the variable transmission gives it surprising zing.
It's the soccer van version of motorcycling.
No choke, no clutch, no foot brake, no shifting, ABS brakes, auto everything and rides dry in the rain..and holds 55 litres under the seat.
Two wheeled car with some fun attached.
Oddly the strangest thing was tossing jacket and two helmets nder the seat and walking into a restaurant or store with no gear in hand- felt weird at first.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Wed May 13, 2009 3:09 am Post subject: Re: My story NHL |
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Hi singleDad
I am very impressed with the canam spyder......next scoot could very well be one...but I will keep our Vulcan until I kark it 
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Mon Jun 01, 2009 5:05 pm Post subject: First year tests coming up |
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Hi All
Well its been almost 12 months and its time for my scans and tests. Today I'm off for a CT scan then in 2 days time it will be the PET scan. The CT scan is a bit of a walk in the park but I really find the PET tedious. I picked up the bottle of contrast that I have to drink before I go in, so once I get there it should all be over in about 45 minute to an hour. The damn PET scan takes 4 hours but it is the most important of the tests. I see the Prof on the 17th to get the results. I'm pretty nervous about the whole thing, as I have had a few issues so I'm not totally confident of how it will go, but I'm staying positive and if it comes back then I will fight. I have stayed away from doing any research at this stage I will leave that and hopefully never have to go there
Back soon with good news hopefully !
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Mon Jun 01, 2009 5:44 pm Post subject: Re: My story NHL |
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Remember my sweatshirt..........Failure is NOT an Option.....good luck ..good health.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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| Back to top |
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Don
Senior User
Joined: 03 Mar 2009
Posts: 181
Location: Northern Virginia
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| Posted: Mon Jun 01, 2009 5:50 pm Post subject: Re: My story NHL |
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Best of luck. Too bad they can't mix the contrast in with Coopers!
_________________
Don B
Dec 07 Dx Follicular NHL, Grade I (Indolent)
Stage IIIA - No Symptoms
Watch and Wait - 6 Month Checks
Jan 09 Scan shows Progression - no symptoms
May 18, 09 - Started R-CVP
After Third Round, CT scan showed some tumor shrinkage
July 31,09 - Completed 6 Rounds R-CVP |
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| Back to top |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Tue Jun 02, 2009 3:07 am Post subject: Re: My story NHL |
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Hi
Thanks SD and Don....hey Don I am now doing a good job of mixing the contrast with the coopers
That contrast is weird stuff...... Felt like I was pooping tabasco sauce 
The nurse who stuck me did the worst job ever....it hurt like buggery  I told him to go for the back of the hand after the torture and it went in first pop with no pain at all.....had he stuffed that up I would of asked for another nurse
Have the PET scan the day after tomorrow....
OT..... things are looking up......the GEC , Global Economic Crisis, could well be history
Cheers 
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Wed Jun 17, 2009 6:12 pm Post subject: Re: My story NHL |
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Hello All
Went in for the big checkup this week and remission was confirmed by CT and PET scans. The Prof gave me the news yesterday. Best news this year by far
Cheers
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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joepet
Senior User
Joined: 18 Dec 2008
Posts: 286
Location: Japan
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| Posted: Wed Jun 17, 2009 9:50 pm Post subject: Re: My story NHL |
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Congratulations! You remain a beacon of hope and inspiration to us all! 
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009 |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Jun 18, 2009 1:25 am Post subject: Re: My story NHL |
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Brrrrrrillliant !!!!!
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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krishinax
New User
Joined: 22 Jun 2009
Posts: 1
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| Posted: Wed Jun 24, 2009 1:36 am Post subject: Re: My story NHL |
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What is the difference between arthritis medicines Mobic and Celebrex?
I take 200 mg Celebrex every day for arthritis. My RN friend says she takes Mobic 15 mg and it is the only arthritis medicine her hospital prescribes since it is safer and works better than Celebrex. I want to know why it is safer and what, if any, are the side effects?
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Last edited by krishinax on Mon Jun 29, 2009 12:36 am; edited 2 times in total |
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