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Darwin
Experienced user
Joined: 11 Feb 2008
Posts: 87
Location: Perth, Western Australia
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 Posted: Sat May 24, 2008 7:10 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Dear Koikkeril
You and your hsuband are in thoughts are prayers as always.
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Ex husband's diagnosis was January 2006, stage IV bowel cancer with met to liver and lungs. Current chemo treatment 5FU + Avastin 24/7 pump plus radiation to pelvic area and planning radiation spheres injected directly into the liver tumours. |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3783
Location: Tennessee
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| Posted: Sat May 24, 2008 10:57 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, you have a lot of friend here who are all thinking about and praying for you. I have receive numerous PMs asking if I had heard any updates about your husband.
I am so sorry to hear that on top of your husband's poor health you are having to deal with this family drama. While I am sure this it is denial and difficult for them to accept, I know how hard this is for you. When my mother was diagnosed, I was in the room with her when the doctor told her. I knew at once what the reality of her condition was. In fact, I know the night before when I say her MRI films. However, some of my family with no medical background did hold out hope of a cure and had a difficult time accepting her choice for no treatment other than palliative care.
I am very glad that his mother was finally able to see her son. In the long run, that will greatly help her.
You and your husband are in my thoughts and prayers.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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Tera
Senior User
Joined: 31 Dec 2007
Posts: 161
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| Posted: Sat May 24, 2008 11:02 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Koik, sending you warm hugs and much sympathy. I know it is so very hard and heartbreaking. |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Sun May 25, 2008 1:50 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Dear Koik,
My heart is breaking for you my friend. Please know there are many here who are thinking of your during this terrible time of life for you and your dear husband. May God be with you and strengthen you to get through the days ahead. I'm glad his family was able to visit, but sorry they didn't understand.
Many hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Mon May 26, 2008 1:36 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi
Yesterday was a very positive day, the sun shone giving us half a day without rain!  We managed for the first time to get my husband in a wheel chair and take him to the garden to profit the sky/birds/sun etc.,  we then decided to wash his hair in the garden and give him a shave.  Rather unusual I know, but most things go this way now. We are not experienced in washing the hair in the bed and waiting another month for a medical team to do this. Of course we soaked him and the wheelchair and ourselves but he looked beautiful afterwards.  The neighbours watched us carry the warm bowls of water to the garden, I know now they think we are mad.
I took those snaps that I kept delaying! My hubby's brother seems to be accepting the fact that his brother is at a late stage of cancer???
Today is a new day and we have decided that we are going to be the medical team in action as the hospitals have given up, he has no drip so we will be concentrating on giving him little fluids at a time amongst prayers.
Gods blessing to you all
koik |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3783
Location: Tennessee
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| Posted: Mon May 26, 2008 6:01 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik, I am very happy that you had a good day. We all deserve a good day once and a while  .
It is a holiday here in the US and although I had planned to spend today with my son and daughter, they had other plans. So is life with teenagers and young adults.
Enjoy each new day.
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Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Thu May 29, 2008 3:42 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I know exactly what you mean Jim, I have a teenage son whom is now decided to stay at home with me, to spend time and help?
He just hasn't the time at the moment as he hasn't seen his friends for a long time! 
Perhaps for me at the moment its better, I have so much to do and to have to run around cooking his dinner is not much help.
Husband is still fighting on, I am waiting for the sun to come out, hoping it will be here for at least another half a day on Sunday?
We did have a stupid situation on the Monday when my husbands pump run out of morphine. He had only recently gone to the hospital previously to have it filled, they forgot to do it! He came home and then the emergency ambulance had to take him to the hospital with low blood pressure and he stayed over night. (That's what you call a waste of money and time).
Take care, God Bless
Koik |
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caligirl
Regular
Joined: 07 Apr 2008
Posts: 37
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| Posted: Fri May 30, 2008 8:38 pm Post subject: The silent killer, aggressive and back. We thought he was NE |
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How was today...hoping tat yo got another good day.....
Sometimes it is just the relief we need to invigorate us....
You are doing an amazing job....Keeps up the good work....
And I am praying that God provides rest and everything else you need too as well as your loved one!!!!!!
Praying for a good weekend for you!!!!!! |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Fri May 30, 2008 9:27 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Goodness, I'm sorry to hear about the pump mix-up! I too hope for more sunshine for all of you.
You're hanging tough my friend, in a situation that is one of the hardest you will ever go through. My heart goes out to you and I dearly hope you are taking care of yourself too. What a loving wife you are, but I know how much this hurts and how stressful this time is for you. I had to chuckle about your son, but sometimes it is overwhelming for them. Kids are kids though, no matter what. One of our son's lives with me, so I can relate. It was very tough on him though to see his Dad's decline.
Keeping you in my thoughts and prayers.
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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Nurse Penfold
Regular
Joined: 15 Mar 2008
Posts: 16
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| Posted: Sat May 31, 2008 2:37 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Thinking of you koik. |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Sun Jun 01, 2008 12:33 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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My Sundays seems quiet cool. Last week as I said he got to the garden via everyone lifting him into the wheel chair and this Sunday he has managed to walk himself with little help upstairs to his bed, not just that he slowly walked to the kitchen with little aid and sat there for an hour. First time standing/walking for 6 weeks. 
We started four days ago on this morinzhi (Morinda juice) it seems to be giving some improvement for the strength/pain. We are giving some kind of medicine (mushroom) along side of this. Have you tried this Botanic juice and did you find incredible changes?
Or do you think this improvement is because he is about to die as I have heard that a person can get a burst of energy before they die, or is he just so head strong that he is able to continue on, surprising every one.
My goodness me, I am so lucky to profit more time and today he knows who I am and wanted a cuddle.
My lucky day with my husband, hoping others have also had a good day?
Gods Blessing, koik |
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Vee Smith
Moderator
Joined: 12 Feb 2006
Posts: 702
Location: UK
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| Posted: Sun Jun 01, 2008 1:43 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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My dear, I think you need to be thankful for anything at the moment. It is wonderful that he has done well this week and long may it continue. If it is the things you are doing, then well done!
Which mushrooms are you using? [Although recently it has been pointed out that all mushrooms contain the enzymes that the Japanese ones have, so that any mushrooms should do the trick].
So glad that Sunday has been a good day again.
Thinking of you.
Vee |
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caligirl
Regular
Joined: 07 Apr 2008
Posts: 37
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| Posted: Tue Jun 03, 2008 9:34 pm Post subject: The silent killer, aggressive and back. We thought he was NE |
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I'm so happy that you are having some good days!!! Cherish them as I know you are.
We thought the same for my mom as she has had days with A LOT of energy. They say that is usually in the last day or week - we even had one day with REAL abnormal energy and then the next day she wasn't good and we thought that it was time.....
However, the Dr.s are not God and we have continued to have many good strong days - so it obviously isn't always the case. Your husband is more clear and like they say, will have good days and bad.....
My mom always says "When you are in good times, appreciate them because they don't last forever but remember that when you are in bad time too - they also are only for a seaon.
I have really learned (and am still learning) that they really don'r know - no one does. They can only make educated guesses - but they are just that - guesses.
I was buying my mom a pie yesterday and I knew that gal that was checking me out. She was asking about my mom and as I was a lady was listening to our conversation.....
She leaned over to me and said "my mom had colon cancer and the Dr.'s told her she had 2 weeks - well she lived 18 mos. past their expectation....
Hang in there and I am praying for many more good days for you..... |
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koikkeril
Moderator
Joined: 29 Jul 2007
Posts: 302
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| Posted: Wed Jun 04, 2008 3:00 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Well we did have some good days, now he has gone back down hill. We managed to weigh him today with great effort, the first weighing was 45kg, then we noticed most of the weight was on the poor nurse. Second weighing was 50kg, I am glad we found another 5.
He is confused again, talking most strange things but his energy level is up and his morphine is reduced.
His brother gives him morinda citrifolia juice (morinzhi) and (mushroom) dxn ganocelium (gl) and dxn reishi gano (rg) perhaps it is this that gives the extra energy? Anyhow, I am getting more time with him than we expected and that is certainly appreciatable, at this rate we may get our wedding anniversary. We wont be doing much like you cali, having a party as there isn't enough of us, but any ideas gratefully received, its a difficult one, I know.
Thank you for your post, koik |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1031
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| Posted: Thu Jun 05, 2008 8:58 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Keeping you in my thoughts and prayers. My husband did make it past our wedding anniversary and he knew how important that was to me. I hope you have more good days with him and sincerely admire your courage Koik!
God bless you both,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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