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rdeegee
Regular
Joined: 23 Jul 2008
Posts: 14
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 Posted: Sat Jul 26, 2008 11:05 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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koikkeril.....I want you to know that I too am constantly thinking of you and your husband, Daniel. I know that your plight is not easy and you are a very special person. I have been reading on this forum because I have recently been diagnosed myself and I have been keeping up with your messages. I joined specifically so that I could wish you continued good days with your husband and plenty of sunshine in your garden for him.
Ruth |
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simplyklb
Senior User
Joined: 04 May 2008
Posts: 218
Location: Near Kansas City MO
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| Posted: Sat Jul 26, 2008 11:21 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
I continue to think about you and Daniel. Take it one day at a time. Lots of prayers for you and Daniel.
Hugs,
Kristi
_________________
Dad - Andy, 70, diagnosed with SCLC in May 2008
2/20/38 - 10/15/08 Fly high, Dad!
Mom - Jackie, 67, diagnosed with NSCLC in May 2008 |
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pbj11
Site Admin
Joined: 12 May 2007
Posts: 1302
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| Posted: Sat Jul 26, 2008 2:00 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Koik,
Oh -- how I hate to think of the struggle you and Daniel are going through. It seems that our Lord is putting you through trials enough to rival Job. You remain in my thoughts. Bless you for your strength and determination to continue to do this the way you and Daniel want to.
Hugs,
PBJ
_________________
Husband diagnosed with NSCLC Stage IV. (Non-Small Cell Lung Cancer) Fought & lived 2 1/2 years with multiple lines of treatment.
Post describing our battle: http://cancerforums.net/viewtopic.php?t=7026&postdays=0&postorder=asc&start=0 |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Sat Jul 26, 2008 7:11 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Have you noticed in my case how many times I have been told my husband Daniel will probably not last the week-end....then everyone gives me hugs and prayers and all the support is there.........then I say, he is back eating drinking and talking again.
I am trying to get him back on his feet again 
So we will see..we are having different paths to walk and according to the hospice post which was put on the site there are similarities that I see in my husband decline which I can familiarise with.........So I am out on a mission to change course 
He is still trying but fluid is gdetting less. God Bless, Koik
_________________
Husband diagnosed with stage 1V NSCLC Febuary 2007.....Lost his battle August 27th 2008 but lives on in my heart. |
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dano
Senior User
Joined: 19 Jul 2008
Posts: 177
Location: Oahu, Hawaii
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| Posted: Sat Jul 26, 2008 9:02 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Dear Koik;
I have never tried to count the number of times you have been told that this is the end, But it seems that each each time it happened Daniel took it as a challenge. I know each doctor and nurse have only done the best they could, but I wonder if Daniel in his own way is trying to tell all of us something. I wonder what is keeping Daniel alive, for sure it is his spirit, very strong. God bless you Daniel, keep showing your love.
God Bless you Koik.
Dan
_________________
54 year old male in Hawaii
Diagnosed Nov. 9,2007 with NSCLC IV
with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08
Currently on chemo treatments every 3 weeks
with Alimta
and taking Lovenox for blood clots
Now back to work full time
http://cancerforums.net/viewtopic.php?t=9993 |
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brainman
Chief Admin
Joined: 13 Oct 2005
Posts: 4297
Location: Tennessee
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| Posted: Sun Jul 27, 2008 12:43 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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I agree with Dano. Every time that they say "This is it", Daniel seems to say "No ones going to tell ME what to do!" My heart is with you and Daniel.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/ |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Sun Jul 27, 2008 6:15 am Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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[quote="rdeegee"]kiril.....I want you to know that I too am constantly thinking of you and your husband, Daniel. I know that your plight is not easy and you are a very special person. I have been reading on this forum because I have recently been diagnosed myself and I have been keeping up with your messages. I joined specifically so that I could wish you continued good days with your husband and plenty of sunshine in your garden for him.
Ruth[/quote]
Hello Ruth
Thank you so much for your kind words.
If it was for this post that made you join us.....In makes me extra happy knowing that this post has opened up the doors for us to be able to say welcome and how wonderful you are to send your regards like that when all the time you have your own stress!
A newly diagnosed person like your self needs all the support you can get. When the Oncologist says this and that it all seems mumble jumble because when we get home we forget!
I hope you will share your story with us and we can help you go through your challenge.
Hope to see your post up there soon Ruth so our friends can accordingly say hello and help you with any of your questions and shock that you may encumber on this roller coaster ride.....Bless you Koik
_________________
Husband diagnosed with stage 1V NSCLC Febuary 2007.....Lost his battle August 27th 2008 but lives on in my heart. |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Sun Jul 27, 2008 3:32 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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PBJ Hi
Believe it or not, today I am loving it......Its a challenge.
Daniel is slowly using his voice and he is starting drinking fluids again....
There goes that stupid box they thought I should order!
We are on route past the week-end.  He seems more alert and he will murmur when I ask a question or something. I even had a cuddle, put my arm around him and when I drew it back he squashed it in his arm pit......
He had strength for that  Thanks to you again for being with me.....
Kristi/Ruth/Kim/Bernice/helens girl/Hopeful/Liz and Cathy.....It is your prayers along side others that we are still hear today, together..
God knows we are not ready. He is giving us some extra time for what ever reasons I am so grateful.....I really thank you all from the depth of my heart for thinking of us and praying......
Brainman.. Um I think that's so, I think he is saying NO, too. That does sound like my husband in good health so why not in poor health too? But I am proud of him...As I am writing this now he is having a little fit, but nothing i am worried about....I have seen some bad ones in my time with him! Thank you too for your prayers...Bless you Jim
Dano...Hello again, its good reading your post...I think it is because of a promise he asked of me a long time ago before we got married...I reminded him several times during his illness and told him what he asked of me I am asking back from him and he is to show me his strength...
Here it goes... Daniel one day said to me "if I ever fell ill or had an accident whatever pain I was in, I must promise him I wouldn't let go and give up, I would fight on"....He always called me his world and said if something happened to me his world would collapse....I have told him the same but I had to reverse it and call that promise back!
He knows I need him and recently I told him to let go but I believe he knew I didn't want him too.
There is something special between us, I always believed God gave us to each other and I still do....
Even in chemo and skinny he is my Angel, he is beautiful and always will be and I know he feels the same way about me.
I never have to question my husband, his word is his respect...He doesn't lie or steal, I am his first girl and he has made no mistakes...He wanted to do missionary work but didn't achieve his goal due to looking after his family in India (being the eldest son).
A little while ago, the last hospital he stayed at, I had some problems with a nurse who was irritated with me over his meds.
The bureau told me my husband was tired and was ready to die! They went on to tell me that he said to a nurse "Thank you I had a nice ending but I am ready now".
I do not now believe he ever said this....I asked him if he was tired he said YES, but because of what the nurse had said I presumed he meant he was ready so I told him its OK to go....
I am a fool at times because I was so surprised he would speak like this i tried to accept it, but mentally I found it difficult to believe that Daniel words would come out the way she said it... Anyhow he is home now and being patched up a little with some loving care...If Daniel can ask me to promise, when he has to be able to do it himself first? He cant give up yet and a NO must be a NO!
Daniel is not suffering in pain no more, it is now controlled from the pump nicely and when my husband gives up, then so do I......Till then we are keeping him away from that stupid box.
Hope I havent bored you with my long ramble.... I am also praying for you too......God Bless, Koik
_________________
Husband diagnosed with stage 1V NSCLC Febuary 2007.....Lost his battle August 27th 2008 but lives on in my heart. |
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B&H1997
Experienced user
Joined: 13 Jun 2008
Posts: 51
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| Posted: Sun Jul 27, 2008 3:52 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi Koik,
I am just so happy to hear that Daniel is spending more time with you. I know God is giving you more time together and that is just thrilling!
My oldest grandchild's name is Daniel. If he is just 1/10 as strong in his life as your Daniel is, he will know no bounds . He is 18 now and is a wonderful young man. Ooop's I'm showing my age
I listen to you strory of your marriage and I also see how wonderfully blessed I am. It took me many years to find my husband but I thank God for the day we met. He is my strength. I have PTSD (Post Traumatic Stress Disorder) and I have had a very tough road the last 11 years. He has helped me through every minute of every day.
Now he needs me and I will be there to do all of what it takes on this journey. I love him so much and I will just take every day as it comes and not worry about the numbers!! Today is what matters.
Thank you again for your inspiration. I will be here for you in anyway I can. My prayers are with you and Daniel as always.
God Bless,
Bernice
_________________
Husband was diagnosed 6-5-08 with Stage IIIA Lung Cancer- NSCLC- Squamous Cell Carcinoma |
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dano
Senior User
Joined: 19 Jul 2008
Posts: 177
Location: Oahu, Hawaii
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| Posted: Sun Jul 27, 2008 9:54 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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HI Koik;
We are going to be here for ever ramble you go on with Daniel. We all care for the both of you very much and would love to be there right along side of you in it all. Thanks for all the good information and positive reports.
God Bless
Dan
_________________
54 year old male in Hawaii
Diagnosed Nov. 9,2007 with NSCLC IV
with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08
Currently on chemo treatments every 3 weeks
with Alimta
and taking Lovenox for blood clots
Now back to work full time
http://cancerforums.net/viewtopic.php?t=9993 |
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Trudy
Experienced user
Joined: 24 May 2008
Posts: 52
Location: Hershey PA
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| Posted: Sun Jul 27, 2008 10:21 pm Post subject: Praying for you |
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Dearest Koik,
I look everyday to read how you and Daniel are doing...
you both are always in my thoughts and prayers...
Koik, please take care of you and go get your tests you need done....
easy for me to say, but only out of love and concern for you
You are an amazing woman and your love and devotion to your sweet husband speaks volumes to all who read the posts...
God bless you and Daniel every single moment...
we are here.
Trudy
___________
84 year old Mother NSCLC Stage 4 |
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hopeful
Regular
Joined: 27 May 2008
Posts: 30
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| Posted: Mon Jul 28, 2008 2:46 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hi Koik
You and your Daniel are an amazing story. He's been able to keep fighting this long due to your care and your love for one another. I think of you every day. |
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koikkeril
Super Moderator
Joined: 29 Jul 2007
Posts: 334
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| Posted: Mon Jul 28, 2008 6:36 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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Hello...
Another day has passed and Daniel has spoken a little more...The words sometimes are very soft and sometimes he just spouts them out.
After reading once again Dano post.......I wonder if Daniel could have a blood clot, I have been surveying him for the last week because he has pain in the left leg and parts of it is very cold.....I have been massaging this leg...  Not good to massage a blood clot......is it 
I have mentioned this to the nurse but they took no notice so I phoned the hospital doctor and asked him if he could take Daniel earlier than the 5th and do a CT scan... (The 5th he should have his morphine pump checked..they will be surprised when he arrives again... )Anyhow he has a cough still and this evening his right arm from the elbow down to his hand is cold, despite me rubbing his hand and arm... I am aware the stages of dying is feeling cold...circulation gets bad, Am I right? Well circulation problems as I understand can lead onto deep vein thrombosis.
I told him today he better start sorting his health problems out as I need some help around here and I told him also, that you all send your love....He understood his holiday is finished laying in the bed and tomorrow i am dragging him back up into his garden...He looks at me as if im b***** mad... he knows me too well, bless him.
My husband lives each day as if he is not going to die and has some awful bug..You can see he is so cool about things. He accepts everything as it comes and I am now shut off to anyone telling me he is going to go soon. Its an amazing existence we have here...We put Indian Christian music on or otherwise we watch some telly...and we carry on as normal, laughing, joking and making fun. He cant yet eat, so I mix a calorie dessert in milk and hopefully keep him going so he will get the strength to kick back....
Well we got through the week-end...Thank the Lord.
Now to see if there is a blood clot trying to escape....This is going to be some task to get a doctor to agree a scan......Anyhow I will try tomorrow.
In the meantime I thank you as always for your support and shall update you on whether i get this scan or not, till then, hugs to all, God Bless, Koik
_________________
Husband diagnosed with stage 1V NSCLC Febuary 2007.....Lost his battle August 27th 2008 but lives on in my heart. |
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dano
Senior User
Joined: 19 Jul 2008
Posts: 177
Location: Oahu, Hawaii
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| Posted: Mon Jul 28, 2008 7:08 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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{{{{{{{{KOIK / DANIEL}}}}}}}}
HUGS
_________________
54 year old male in Hawaii
Diagnosed Nov. 9,2007 with NSCLC IV
with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08
Currently on chemo treatments every 3 weeks
with Alimta
and taking Lovenox for blood clots
Now back to work full time
http://cancerforums.net/viewtopic.php?t=9993 |
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Tera
Senior User
Joined: 31 Dec 2007
Posts: 187
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| Posted: Mon Jul 28, 2008 9:29 pm Post subject: Re: The silent killer, aggressive and back. We thought he was NE |
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| Ditto what Dan said, big hugs to you and Daniel, Koik. |
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