first post regarding my dad's pc

cahoona · New User Joined: 05 Feb 2008 Posts: 2

othis is the first time i post on here. my dad was diagnosed with pc more than a year ago, had the whipple op done almost a year ago to date. he was doing fine, god bless him, untill recently. the strange thing that's been happening for the last 3 weeks is that he is just falling asleep, or maybe better said he just shut's down in mid motion. he had to go to the er several times now, they found out he was short on vitamin b12 and that he also needed blood transfusions. it helped the first two times. his physician seems to be humbled about that too but he thinks it has to do with the oxygen supply to the brain. my question is if anybody else has had the same experience and what was done about it. every input would help us out greatly.
my dad is living with us now since november last year this way we can take better care of him.
my heart and prayers are going out to all that have lost loved ones due to this terrible desease and/or are still have to deal with it

Emma · New User Joined: 12 Feb 2008 Posts: 1

Hi cahoona,

This is my first post as well...I have been helped so much reading the posts in this forum. I'm so sorry to hear about your dad. My dad too has pc, he was diagnosed in November '07 with stage 1V. Over the last month he was exhibiting the same symptoms you describe...he just stopped talking in mid-sentence and his eyes would close. A minute later he would open his eyes and resume his sentence. He had a transfusion last week because his hemoglobin was very low and it has really helped him to be more alert and focused. From what I have read the benefits only last about 3 weeks before another transfusion is needed and eventually there may not be much of a response at all.

My parents are moving to a new home this week (purchased before diagnosis) and it feels awful packing up all of their things to move to a new home...it should be a happy event, but instead it feels hollow and very sad.

This is such a horrible disease...please know that I share your heartache.

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