Anybody out there with M4, t(6;9) AML?

sammac · New User Joined: 23 Jan 2008 Posts: 3

Hi All,

I have been lurking for a while and this is my first post. My husband was diagnosed with AML in April last year and he has had two lots of chemo which put him into remission. He has t(6;9) with FLT3, M4 AML which is quite rare (1% of all AML adult presentations) and it is in the poor risk category. All the literature says that his only real chance of long-term survival is a BMT but we don't have a donor so we have had some molecular monitoring done to assess the level of the disease before we look at other options such as a mismatch MUD or a CBT. The results have just come back and there is some evidecne of the disease but it is minimal (there has been a 3 log decrease since his original BM Bx). Which is good but as they don't have a lot of data on this subtype, they are not exactly sure what this result means so we are going to follow-up in a month's time and see which way it is moving if any. It is so stressful knowing it could come back at any time Sad

and I just wanted to know if there was anyone out there who has had a similar diagnosis and what their expereinces have been.

Sam

brainman

Hi Sam. I am very sorry about your husband's diagnosis. Although my family had ALL, I do not understand the medical terms you use to describe your husband's AML so I cannot be of much help in that area.

You and your husband are in my thoughts and prayers.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

sammac · New User Joined: 23 Jan 2008 Posts: 3

Thanks Jim. Yes, it has been a steep learning curve trying to understand the best path to take. It's rarity doesn't help matters but I am doing all I can to make sure we make the most informed decisions about his disease. It has been a hard year and I am so worried that our children (aged 6 and 2) won't have their Dad while they are growing up.

Sam

brainman

Sam, the problem with any leukemia is the possibility of infections. In fact, an infection is actually what actually kills most leukemia patients. Just make sure your husband stays strong and does all he can to have a strong immune system.
_________________
Jim
Site Administrator and long-term cancer survivor
1992 Astrocytoma grade 2, left motor strip
2005 Recurrence this time said to be an Oligodendoglioma grade 3, same location.
My Story Part 1: http://cancerforums.net/viewtopic.php?p=7350
My Story Part 2: http://cancerforums.net/viewtopic.php?t=8029
Blog http://jimhawkinsport.blogspot.com/

sammac · New User Joined: 23 Jan 2008 Posts: 3

Yes, I am aware of that Jim but with due respect, no amount of trying to keep the immune sysytem strong will be of any use if the disease re-manifests itself Confused

, which is what we want to avoid.

rocketpup1 · New User Joined: 15 Sep 2007 Posts: 4

I am a survivor of Aml m4. I went through my induction therapy in 12/1991 and received my last chemo in 8/92. I was on a study and have done well. I was 48 or 49 then and had a 12 yr old. Being the patient is so hard--I can identify how your husband must feel. If you would like to talk more I will be glad to listen. I don't know all the specifics of your description of his type of leukemia but it sounds pretty similar. I don't think there is a good kind. I know your husband is fighting as hard as he can and worries over your worring. Let me know if I can help. I didn't have a donor either and ended up donating my own marrow and having it frozen. I just take one day at a time.
_________________
I celebrate Life-Bad Hair Days for there were days I had no Hair !!!. I am 16 ys and almost 1 mo cancer free. I get checked 1 time a yr. I had AML Luekemia but Leukemia didn't have me. Praise God--I remain free.

	Cancer Forums Forum Index -> Leukemia Forum	All times are GMT - 5 Hours
Page 1 of 1

A website for discussions about any type of cancer, including lung cancer, breast cancer, mesothelioma, prostate cancer, laryngeal cancer, leukemia, lymphoma, multiple myeloma and others