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Aimster
Regular
Joined: 03 Jan 2008
Posts: 38
Location: Nebraska
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 Posted: Mon Mar 10, 2008 5:05 pm Post subject: Re: silent |
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Hey Tam,
I'm doing all right. Yes, I'm still working - my tumor is asymptomatic so life just chugs along as normal and most people have no idea there's anything going with me. Which is good and bad, I guess. My next MRI will be in the late April/early May time frame and if there's growth or change we will schedule surgery. So I'm trying to accomplish a long list of work and life tasks now, in case things get put on hold for surgery. My son's 2nd birthday is coming up so I'm getting ready for that, and going on a business trip in a few weeks too.
Unfortunately I'm having a lot of migraines lately. That's what led me to have an MRI and discover the tumor. I feel kind of cheated - I go to the dr to get help with these headaches; I come home with a brain tumor diagnosis AND I still have migraines! I've also had fibromyalgia for about 15 years, so this whole chronic pain thing is getting VERY OLD.  Sorry, that was my self-pity moment for the day.
Jim, I agree that you have a gift with people and you should get paid to use it  Take care everyone!
_________________
Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526 |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 3976
Location: Tennessee
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Mama 2 2
Experienced user
Joined: 29 Nov 2007
Posts: 56
Location: Sunshine Coast, BC
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| Posted: Tue Mar 11, 2008 12:54 am Post subject: Re: silent |
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Hi Tam & everyone!
Tam, I'm sorry to hear about your Gram - I can totally sympathize. . . I feel incredibly blessed to still have all 4 of my grandparents in my life, though I know it's only going to be for a matter of time now and when that time ends, the fact that they have been there my whole life will make it that much more painful to see them go. I love the fact that my girls have had the chance to get to know them too as all four of them live relatively close and we try to see them whevever we go into town. It sounds like my Grandad might have to go into a home soon though, as it sounds like he is starting to suffer from dimentia. =(. I really feel for you and hope your Gram is doing better soon. . . .
As for your driving, my hubby only lost his license for 6 mos this time (after his first seizure and surgery it was a year) and he gets it back in two weeks!!! YAY! I think I'll be as happy about that as he will! Fortunately we live in a small town and he can walk to work, but when he wants to run out for small errands, we pack all four of us into the car - and taking a 3yr old and 5 month old anywhere is no quick trip.
My husband still has that bloody cough - the asthma puffer doesn't seem to have done much but make him light headed . . . though he said it helped a bit. We had a fun weekend though, as my oldest turned 3 on Friday, and we had a little party with some of her friends on Sunday. We tried to keep it as low key as you possibly can with a bunch of toddlers in the house, but it was a really nice day. I hope you have fun with your little one's birthday Amy!
Hey Jim - you should move up here to BC - they are looking for people to work in ALL kinds of jobs. It can be pricey to live, but at least the health care is covered. I know there's a lot of talk about wait times, but when it comes to things like brain tumours, we haven't found that to be an issue (though if you needed a knee replaced you would likely have something to complain about . . . ). We don't get NEARLY as much snow as Tam does either (though ours isn't as nice as in NB - it's more like wet sludge), but it does rain a fair bit. I've lived here my whole life though, so I'm quite used to it.
Well, I guess that's my update for now .. . all else is pretty normal - our next scan is in two weeks so it's starting to make my stomache turn a bit already, but I try not to let it get to me too much yet.
I hope you are all well!
Cheers!
~C~
_________________
~Life's too sweet to be bitter~
Our Story: http://www.cancerforums.net/about7982.html
www.caringbridge.org/visit/eliasminatsis |
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Aimster
Regular
Joined: 03 Jan 2008
Posts: 38
Location: Nebraska
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| Posted: Thu Mar 13, 2008 12:24 pm Post subject: Re: silent |
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Mama 2 2,
Congrats to your husband on getting his license back! Sweet freedom!! I worry a lot about what would happen if I lost mine. The city where I live is pretty spread out and has practically no mass transit options
Glad you had a fun 3rd birthday party! We're just doing the family thing this year, no toddler friends invited, since he's only 2. Probably next year. I'll be keeping your family in my thoughts as you prepare for the next scan, and sending out prayers for good news.
_________________
Amy (39)
*low-grade oligoastrocytoma in right frontal lobe, with 1p/19q codeletion and early anaplastic features (first observed Aug. 2007; diagnosed Jan. 2008)
*gross total resection July 2008 at Mayo Clinic
http://cancerforums.net/viewtopic.php?p=28526 |
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Tammy
Regular
Joined: 27 Nov 2007
Posts: 40
Location: New Brunswick, Canada
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| Posted: Tue Oct 14, 2008 10:44 am Post subject: Silent |
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Hi everybody =)
It's been a long time since I have typed on here. I was thinking of you and thought I would read a few stories and write a note. Things have been ok here. I have had 2 MRI's my head/back the pass few months and my sugeon called for an appointment to talk about the results on November 5th. To give you a quick update on my symptoms; I have trouble getting out of bed most mornings, I not only have another tumor on my back, I have something wrong with my tailbone and a pertruding disc. There is one thing I am concerned about is my hands in the morning, they are very sore, stiff, cramped and difficult to get moving. They stay pretty much sore all day. I am wondering though if it's my pain medication or my brain tumor starting to act up again. Well I really hope most of you new people here are getting the comfort and help I have gotten from the people on this site. Please take care and I hope you still pray and keep your spirits high as you can.....
Take Care My Friends.......
Tam~ XoX *hugz* |
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