28y f waitig result

havefaith · Posted: Sat Sep 05, 2009 2:21 am Post subject: 28y f waitig result

hi everyone i am 28y f my story began 6 months ago i did have a x ray who shows a big spot in the mediastinal area after i did a ct scan they said that i have many big lymph node in the chest not in the lung but in the mesiastinal with no calcification. i saw a thoracic surgon who saw the ct scan he transfer me to a thyroid surgon because i develop a hypertyroid so the thoracic surgon think that what i have in my chest is thyroid tissu. i saw the tyroid surgon who ask me to do a scintigraphy in nucleaire medecine after the scintegraphie was done they ask me to do a 123 iode scan something like that. i meet again the tyroid surgon who scasual a surgery a month later they said they will open my neck and try to pull the mass in my chest by the neck plus removing all my tyroid by throidectomie total.
i did have surgery a week ago and they open my neck and they did a partial sternumy they open the upper of my chest. when the surgery was done the docteur say the mass in my chest was the size of a grape fruit for the first nodule and a walnut for the second nodule, for me is huge. i am in montreal canada and surgon said that for getting result for my biopsy i have to wait more than a month. is not long a month for a biobsy result. for me now that i know that the size of the tumor is a gape fruit a m sure they gona said cancer and in a stage late but dont know if the mass is a metastasic or is primitif one nobody told me anaything. anyway have something similar to me can light me thank you. and for every one who is seek keep faith.

aisha1 · Posted: Sat Sep 05, 2009 4:36 am Post subject: Re: 28y f waitig result

Hi, and I'm sorry to hear of what you are going through, I hope you have some answers soon.

Well, you were looking for someone similar to you - looks like you found her!

I am a 27 year old female, and have nearly the same as you, except not in my thyroid. I have media stinal masses, 3 of them in my chest, but also have nodes in my neck, which were biopsied.

It is so nerve wracking having to wait for biopsy results, and I have never heard of them taking a month at all. They will be back in about a week I should think. Whoever the consultant was that is leading you - give him a call (or his secretary) every few days just to remind them that you are waiting. Also try and get them to call you back to let you know what's going on (updates), that way you will feel as if they haven't forgotten about you, even though it is taking days.

I hope you will start to feel better soon. I have masses around my trachea and it is not easy to breathe at times (walking fast of climbing stairs). I am guessing you have the same problem.

I have a few questions........
How did you discover this? Did you feel a lump?
Have you lost weight or put on weight? Have you had any sweating, even when it is late evening and not hot outside? How do you feel in general? Are you very tired? Have you noticed any other changes in your body?

Hope you are feeling better soon. I am not a doctor, that's not why I am asking you questions. I just want to have a clearer picture of what was going on with you.

Hoping you are feeling better soon, and you have some results. Try and keep calm in this situation, you are in control of your own life. Sometimes other people around you are in panic MORE THAN YOU and can make you worse. Try and stay away from them for a little while (might be hard as they may be family), but just talk about something else for now.

I'm thinking about you.

Aisha. x

havefaith · Posted: Sat Sep 05, 2009 5:12 am Post subject: Re: 28y f waitig result

thank you aisha for your reply, that is make me feel that someone care to take time to answer me, that is sweet of you.
how i was feeling 6 moths ago when everything began, i was very tired, pale, had many pain in the troat.. since 2 years my weight take a hi a began to be very exited and always hungry.. when i was sleeping in my back my chest was compressed and i did have palpitation and ansomnia ..i did have alot of symptom name it i did have my body was a mess and a lot of moody time, maybe because of the hyperthyroid.
yesterday the docor call and i ask him can you have the result before the period of one month he said maybe it will take more than that, i didn t push because already i don t have best connection with this doctor i feel he is impatiant and i am more. so i let go, maybe i can try with my other surgon i am treated by two surgon head and neck and the second thoracic.
maybe i explain badly something my tumor is in the mediastinal place not in the thyroid, they remove the thyroid because is enlarged. nobody know alot of mediastinal tumor.
please can you tell more about your story everything because you have the same kind.
jazake allah kheir my name is zakia.

bythe way canada have a health crisis maybe that is why i have to wait a month maybe.
thanks aisha

ChemoMan · Posted: Sat Sep 05, 2009 5:55 pm Post subject: Re: 28y f waitig result

Hi havefaith

So sorry that you are here and sorry to hear of your troubling symptoms. Try and relax I know it is hard waiting for biopsy results, but getting very stressed is no good for you. If you have any questions try and resist the urge to ask them here at this point and try and stay away from the internet before you get your biopsy result. The best you can do for yourself is write your questions down on paper and ask the doctor when you go to see them.
No one here can really help you at this stage as we don't know what you have yet. Don't worry about the wait for the results it won't make any difference and it will not harm you. I cannot comment on the Canadian health system other than to say they are very good at treating all types of cancer.

Rule number 1 here is don't panic....rule 2 is dont forget rule 1.

Good luck with the results and we are always here if you need our help in future.
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1

aisha1 · Posted: Sun Sep 06, 2009 7:24 am Post subject: Re: 28y f waitig result

Hi Zakia,

ChemoMan is correct in saying that you need to relax right now. The doctors seem to be tracking down how to treat you and what is really going on, so this will be a test for your patience right now. You just have to be patient and stay away from people that might be making you worse with worry or anxiety.

I also think that you should not be fasting at the moment, so if you are I suggest that you eat as normal. Don't worry about what people will think. You know that you need to feed your body right now. You are sick, and that may or may not be lymphoma, but whatever it is, you need to eat.

I hope that you are going to have some answers soon. Things will seem clearer when you have answers about what is going on with you. Look on the bright side - you have 2 doctors working on this! That is a very good thing. They will know how to deal with your case soon enough. Don't worry and just live your life. Find something to occupy yourself at the moment.

Aisha. x

aisha1 · Posted: Fri Sep 11, 2009 4:16 am Post subject: Re: 28y f waitig result

Zakia,

How's it going? Have you had any other updates? I was wondering if you have had the chance to speak with the other doctor about our results coming back?

Hope you are ok.

Aisha x
_________________
Diagnosed Hodgkins lymphoma, nodular sclerosis, grade 2.
Stage II/IIIa.
Chemotherapy ABVD started August 2009.
Still looking young Wink

aisha1 · Posted: Fri Sep 11, 2009 4:22 am Post subject: Re: 28y f waitig result

I meant to write "your results", not "our results"!!! Sorry! Rolling Eyes

I'm guessing from your posts that you are French speaking?
_________________
Diagnosed Hodgkins lymphoma, nodular sclerosis, grade 2.
Stage II/IIIa.
Chemotherapy ABVD started August 2009.
Still looking young Wink

havefaith · Posted: Fri Sep 11, 2009 4:11 pm Post subject: Re: 28y f waitig result

hi aisha,
no dear no answer at all, yesterday i was feeling very bad, i did have chest pain, so i went to the emergency, i wait there 4 hours before they begin to see me after that they did me blood test x ray ct scan to see if i have a clothe becaus my blood test came positive to coagulation of the blood, they keept me for the night and in the morning they say everything is good but they change my pain killer for a more powerful one and they said i have to take it. i did today after they release me and believe me after 2 weeks of pain because i could nt move in my own bed now i can sleep like human, so i will take it i will not try to be a hero and cop the pain like others do because they are afraid to be addict i will take the minimum doses untill the pain will gone.
by the way why u don t take your pain killer, the pain is not gonna help to stay positive for a long time so in my opinion you should take in minimum doses like that you will be confortable to cop the rest is gonna be a long journey so save your energy and positive attitude because they gonna have bad days and it is ok if u have have it, all what u have to do is to wait the night to go away and the light of a new day to begin. days and night this is life.
for your friend in the hospital don t go, a infection can be very bad for u some people have to be in the hospital for that, so be wise they help u but they didnt put their health on the line. u have kids try to stay healthy as u can. explain to them that u want to go but the doctors say is forbidden.
take care sweety and be patiant your treatement is like the winter a season that will gone and the spring will come.
excuse my bad language , english is my third language.
_________________
28 y f
thyroid cancer (28-09-09)

thyrodoctomy total+ sternotomy median 2009

what is worth the price always worth the fight.
stay strong and live strong.

aisha1 · Posted: Fri Sep 11, 2009 6:20 pm Post subject: Re: 28y f waitig result

Wow! You really sound like you have had a rough time. I'm really hoping that your visit to the emergency room has persuaded them to speed up the process of the biopsy results? I'm hoping that it was the same hospital.

Your English is fine, don't worry. I can understand what you want to say, so that is all that is needed. You spell in a French way sometimes, which helps for English speakers because it is so similar. I can understand what you want to say, so you can continue as you are. If I tried to write in another language, I would be TERRIBLE! Rolling Eyes

Why did they say that your blood was coagulating? Did they give you a reason? I know sometimes it is like they don't know what they are doing, but they do. I learned that myself. It looks like they don't know because they don't tell you what is going on behind the scenes. They just keep everything like it's a little secret, and if you want to know, you have to ask. I made sure that I asked them lots of questions, but even then, sometimes they say "Well, we will have to wait" or "I don't have the answers, ask the other doctor when he comes to see you". So sometimes you can go around in circles, but they are trying not to scare you.

I'm sure that you will post back with answers soon. I have a feeling it will be no more than one week.

I'm thinking about you everyday, and I want you to be ok. Tahalah fe rassuk.

Aisha.
_________________
Diagnosed Hodgkins lymphoma, nodular sclerosis, grade 2.
Stage II/IIIa.
Chemotherapy ABVD started August 2009.
Still looking young Wink

aisha1 · Posted: Wed Sep 16, 2009 3:56 pm Post subject: Re: 28y f waitig result

Zakia,

I was thinking about you today. Hope you are ok because I haven't seen you in the forum and wondered if you were perhaps in the hospital again? Hope not.

Are your results back?
_________________
Diagnosed Hodgkins lymphoma, nodular sclerosis, grade 2.
Stage II/IIIa.
Chemotherapy ABVD started August 2009.
Still looking young Wink

havefaith · Posted: Mon Sep 28, 2009 8:46 am Post subject: Re: 28y f waitig result

Hi everyone,

today in the morning i was still sleeping my doctor call me, to tell me that for the result of the patology, i have 2 cm tyroid cancer and for my tumeur in the chest (mediastinum) is benign.
is strange he didn't tell me sorry, or anything, like if he was telling me that today is gonna rain, normal tone.. Rolling Eyes

maybe i will be in line with aisha, strange doctor, the funnist thing he is in the head of a fundation for cancer.
anyway, he said that he gonna need to see me every day, next month to give me shots of nucleaire staff for a full body scan. anyone had shots for a week for a scan, strange thing every day we learn a new thing.
i pull informatin from the doctor, i ask him if my cancer is a primar one or metastas he said is the primary one, and i ask him the stage he said one but in scale 1 on 2 or 1 in 4.
i call the secretary to know if it was papilaire or foiliculaire or watever, she said something that i forgot 2 minutes later, i think she said follliculaire, my memory need some treatement Very Happy

this months.
watever fox i still are in good mood, coz thyroid cancer is better than lymphome, so i thanks god, even if it still cancer.
you know what you are the first to know my diagnostic, i am afraid to get worrried my family and hausband, so i think i will not tell them for the moment they don't need to be worry, even if i will have a special treatment.
but is still good to tell someone maybe you are a thousand in this forum, if i will not tell anyone is gonna be to much for me.
take care fox and god bless u all.
_________________
28 y f
thyroid cancer (28-09-09)

thyrodoctomy total+ sternotomy median 2009

what is worth the price always worth the fight.
stay strong and live strong.

joepet · Senior User Joined: 18 Dec 2008 Posts: 288 Location: Japan

Hi havefaith,

Very sorry to hear the diagnosis was not what we were hoping for. Sad

At least it sounds like they have caught it early, and of course, the earlier the better for these things.

I do think you should at least tell your husband about the diagnosis. I know if the roles were reversed, I would want to know and do whatever I can offer support at such a time. That's what people pledge to do when they get married, right?

Obviously, treatment for thyroid cancer is much different than that of lymphoma. I see you have already found the thyroid cancer board; hopefully they will have some good advice for you.

Good luck to you, and all the best in beating this!
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009

havefaith · Posted: Mon Sep 28, 2009 9:11 am Post subject: Re: 28y f waitig result

hi joepet,
thanks for your postreply, yah i can tell my hausband but people have a limit for desaster, even i will not call it like that, but for him is gonna be like that. he have have already big financial problem coz of the economic crisis in the word, his mum in muntaly very sick this days, so he is devasted, and i will come and tell him don't worry i have cancer but you know what is a early stage Shocked

, no is too much for anyone, not now i will wait.
joepet are you a english teacher in japan or there for trade, i am sure everyone is curious.
take care god bless ou all.
_________________
28 y f
thyroid cancer (28-09-09)

thyrodoctomy total+ sternotomy median 2009

what is worth the price always worth the fight.
stay strong and live strong.

aisha1 · Posted: Mon Sep 28, 2009 10:10 am Post subject: Re: 28y f waitig result

Zakia,

You had a long wait but at least you now know what is going on.

I'm really sorry to hear of your diagnosis. You will get a chance to have a long chat with the doctor when you go to see him and get to know what exactly is going to happen.

When he was explaining things you might have been confused, that's why you were forgetting things and had asked something and then forgot. That also happened to me the day I was diagnosed. I felt very odd, like I was living in a bit of a dream. I was askiing questions, but forgetting the answer when I left the hospital. You may have been preparing yourself for this news, but it takes a while to sink in and for your brain to become used to it. For me it took about 2 weeks, but you may be different.

About your husband - you know him best and so whenever you feel is the right time to tell him then that's up to you. If I were you I would try and tell a close friend because you shouldn't have to go to your next appointment on your own. When I went for my full diagnosis I had my friend with me, and she helped me remember things that were being said. You should have at least ONE STRONG PERSON that you can talk to and who can come to at least a couple of important appointments with you.

You are strong Zakia, but everyone has to open up with their problems now and again, and I know that the internet is helping you now, so you should carry on with that if you feel that you should.

I'm not sure why they would give you injections every day for a scan, that sounds strange, but check it with them when you get there.

I also think that it was a bit insensitive for your doctor to tell you your diagnosis over the phone. I'm not sure if others think the same, but I find that an insensitive thing to do. I'm hoping you feel ok soon, and keep us updated with progress.

I've really grown to like you the past few weeks. I'll be praying for you and thinking of you.

Aisha.
_________________
Diagnosed Hodgkins lymphoma, nodular sclerosis, grade 2.
Stage II/IIIa.
Chemotherapy ABVD started August 2009.
Still looking young Wink

SingleDad · Posted: Mon Sep 28, 2009 10:14 am Post subject: Re: 28y f waitig result

HF
Use your judgement on who knows what....I kept my circle of knowledge very tight - even my daughter did not know for a couple of months.

Clearly he has his hands full and you are content that your treatment will proceed okay..
His worry would be a stress on a you both and there is no good to have additional load on the family.

Use your judgement, stay positive and your support of him will be useful for your spirits.....

We're around.....good luck.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink

Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green

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