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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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 Posted: Wed Apr 01, 2009 10:15 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Yeah - eating settles the stomach but I think it's basically not absorbing enough nutrients so maybe 1/2 of the nutrition is satsified and you get hungry a couple hours later.
It's all for rich foods in protein and fats so I've learned to do small meals - maybe half an Octoberfest, a couple small red potatoes sliced and a couple of eggs - - that satisfies me for maybe 3 hours.
I'm using smallish bowls so it feels like a real meal.
A burger satisfies as well, maybe 3-400 calories but has to be protein and fat rich.
Cereal and fruit that I would normally snack on does nothing...I'm hungry in a flash and the fruit I have to watch with digestion.  I love fruit but I've been sticking with bananas.
It's funny cruising the fridge as clearly my body is looking for certain categories.
Part of it too is the chemo for me means more saliva and that's a secondary eating trigger.
I'm pretty sure it's related to cell shedding in the small intestine so my nutrient uptake is mucked.....body wnats something it's not getting and despite the rich diet my weight is down just a tad so I know I'm not absorbing what I'm eating.
The doc said eat when I asked about it.....so it's sort of fun to indulge.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops  |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Thu Apr 02, 2009 1:36 am Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Hi Singledad
Be careful...the steroids will ramp you appetite up, but if you are not careful you will chuck your guts up. You won't know if you have overdone until you are driving the procelain bus by which time it is too late. I put on 2 kilos during my chemo and apprently with R CHOP this is not unusual. Be very careful by all means eat but try your hardest not to overeat.
Good luck 
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 02, 2009 2:24 am Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Yeah = that's why I'm keeping the portion size down.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 02, 2009 12:29 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Munchies mostly gone.....tired out my tree with a tough night with kid with diabetes.....
worst low he's had in a while - now I'm bagged - he's bagged and I'm cranky and he wants to go riding....ah the resilience of youth.
and of course its
a) gorgeous warm day out
b) I'm jammed up to the eyeballs with clients.....
damn missed one steroid - sigh.....maybe an energy boost......
whine whine whine......wine???....hmmm
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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brainman
Site Admin
Joined: 13 Oct 2005
Posts: 5609
Location: Tennessee
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 02, 2009 3:54 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Yep - if you read back - because of the sort of "cure" for arthritis that I hadn't really realized was a problem.....for likley 2/3 of this treatment so far I feel BETTER phsyically than I have in years.....
go figure....
Besides...humour works
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 02, 2009 6:45 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Feeling a bit more on track....took myself out of the loop for a bit - book and a Swiss Chalet munch then a long nap.
Gotta watch kid close for the next few days
such a nice day for riding but too tired ......weekend soon - much sleep too I hope - part of the steroids i don't like.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Fri Apr 03, 2009 6:45 am Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Buzzy today - ton of energy despite the rain ( tho it was a sprng rain - birds singing etc )
Hunger easing off tho a bit of headache that's typical for a rainy day.
Woke up way early, tested kid - lots of laundry and tidy up ( someone should market a "get your house clean" steroid dose. )
Fading a bit now.....all caught up on the minor tasks.
Harry Potter and a snooze calls.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Fri Apr 03, 2009 9:14 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Very rainy day - set a 50 year record.
Lots done early - then a slow morning.
Great late afternoon nap.
Feel very centred and well this evening.
Partly weather related - always feel this way on the back side of a storm system.
Not so hungry and tummy mostly settled....need to snag some tea tho.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Mon Apr 06, 2009 9:37 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Energy up and down all weekend. Go go go ....crash......go go go ....crash.
I'm just riding with it not trying to fight it.....
Pretty wild swings ......not many side effects on this cycle so far - mouth a bit sore today.
Appetite settling down .
Itchy that feels like healing internally has moved to fingers and fingers very hot and cold sensitive.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Tue Apr 07, 2009 10:05 am Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Decent sleep, good energy despite spring being cancelled for a week - SNOW ON GROUND !!!!
Ache all over and cramps - must be potassium but this time my joints ache too.
Otherwise okay...
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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| Back to top |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Wed Apr 08, 2009 10:09 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Best day in terms of energy ....crashes were not so pronounced.
Mouth okay, no headache and appetite down but good.
Got a lift last night.
Don't know if anyone is an Idol fan but I think Adam's performance of Mad World is the perfect theme song for this forum.....
Perhaps THE most moving performance in the 8 year history and I've watched most of it.
Even Simon the grinch knew it..... the kid was BORN to entertain.
Bio at the beginning is cute - the performance after...unreal.
Been running around in my head all day and a perfect match to my mood.
Enjoy
http://www.eonline.com/uberblog/watch_with_kristin/b117637_american_idol_adam_lamberts_mad_world.html
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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| Back to top |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 09, 2009 3:09 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Sleepy lazy today.
Mouth sore - self inflicted -
Don't eat salt and vinegar chips on CHOP+R 
Long weekend - yay
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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| Back to top |
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ChemoMan
Moderator
Joined: 04 Jun 2008
Posts: 1061
Location: South Australia
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| Posted: Thu Apr 09, 2009 5:01 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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Hi
What were you thinking eating salt n vinegar chips That's rule number one
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1 |
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SingleDad
Senior User
Joined: 12 Feb 2009
Posts: 245
Location: Canada
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| Posted: Thu Apr 09, 2009 5:45 pm Post subject: Re: Diffuse Large B cell Lymphoma Feb/09 and CHOP+R diary |
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But but but the regular were fine.... 
Total sleepyhead today.....wallowing in green at the Masters - I want spring.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops |
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| Back to top |
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