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Primary Colonic Lymphoma What is this ?
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Post new topic   Reply to topic    Cancer Forums Forum Index -> Lymphoma - Hodgkin's and Non-Hodgkin's Lymphoma Forum


Author
SingleDad
Senior User


Joined: 12 Feb 2009
Posts: 235
Location: Canada

PostPosted: Tue Mar 31, 2009 4:37 am    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Yeah I avoided the drug plan - it's been a balance off. Self employed would have cost a couple hundred a year for dental and drug.
We have a cap on drug costs anyways /
The steroids cost nothing - just the anti-nausea.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green
Back to top
joepet
Senior User


Joined: 18 Dec 2008
Posts: 273
Location: Japan

PostPosted: Tue Mar 31, 2009 11:23 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Maybe ChemoDad can give us an update on how this latest Google product is going over in Australia?

http://www.google.com.au/intl/en/gball/
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009
Back to top
ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1027
Location: South Australia

PostPosted: Tue Mar 31, 2009 11:41 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Hi Joe

Must be april the first Laughing
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
Back to top
joepet
Senior User


Joined: 18 Dec 2008
Posts: 273
Location: Japan

PostPosted: Fri Apr 03, 2009 7:19 am    Post subject: Re: Primary Colonic Lymphoma Reply with quote

I don't feel _bad_ today, but very tired and lethargic. Like the world is moving at double speed.

Oh well, a relaxing weekend awaits! Smile
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009
Back to top
ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1027
Location: South Australia

PostPosted: Fri Apr 03, 2009 6:19 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Hi joepet

I basically stayed in bed for 3 days at the last cycle. It takes a while to get to top form but you will get there.

I take it all is finished now Very Happy
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
Back to top
SingleDad
Senior User


Joined: 12 Feb 2009
Posts: 235
Location: Canada

PostPosted: Fri Apr 03, 2009 9:12 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

During the 5 day chemo??

Hmm - I must be fortunate - I do crash in the afternoon - had a good sleep this aft but except for the first day and evening I'm pretty much fully functional.....cept for the munchies which are sort of fun.

The crashes are vicious tho.... Shocked
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green
Back to top
ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1027
Location: South Australia

PostPosted: Fri Apr 03, 2009 9:52 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Hi singledad

You misunderstood me...this was after the end of the 6th cycle, its the worst cycle for fatigue....when you get there you will know what I mean Smile
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
Back to top
SingleDad
Senior User


Joined: 12 Feb 2009
Posts: 235
Location: Canada

PostPosted: Fri Apr 03, 2009 9:53 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

oh gee thanks Wink
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green
Back to top
ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1027
Location: South Australia

PostPosted: Fri Apr 03, 2009 9:55 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Laughing Very Happy Laughing
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
Back to top
SingleDad
Senior User


Joined: 12 Feb 2009
Posts: 235
Location: Canada

PostPosted: Fri Apr 03, 2009 9:56 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Lucky I have a lot of Potter books.
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green
Back to top
joepet
Senior User


Joined: 18 Dec 2008
Posts: 273
Location: Japan

PostPosted: Tue Apr 07, 2009 7:41 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

I was feeling really tired and worn down this morning, with dull aches in arms and legs, from the time I woke up until making it to work. Unfortunately, I found the cure: a morning cup of coffee.

I don't even drink all that much normally, certainly not as much as in my youth. Perhaps a cup of coffee and some tea. But I don't recall having anything caffinated yesterday, and I guess my body started to react today.

I guess that caffeine withdrawal becomes stronger during chemo as well. Confused
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009
Back to top
SingleDad
Senior User


Joined: 12 Feb 2009
Posts: 235
Location: Canada

PostPosted: Tue Apr 07, 2009 8:47 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

I'd say maybe - first week caffeine was the only thing that knocked the headache down ...not much lately but then I'm on a few latte a day again do
_________________
Age 61
Diffuse Large B cell Lymphoma Stage 2/3
CHOP+R started Feb 26th 2009
Completed 6 cycles June 2009
Diary here http://cancerforums.net/viewtopic.php?t=12003
Officially in remission July 9th 2009 Wink
Three rounds of Intrathecal completed July 29th
Radiation to come as a prophylactic measure.
1st Radiation Sept 9 - 17 does completed Oct 1.
No more treatments scheduled
Heading to South Africa in January - once the itching stops Mr. Green
Back to top
joepet
Senior User


Joined: 18 Dec 2008
Posts: 273
Location: Japan

PostPosted: Thu Apr 09, 2009 7:38 am    Post subject: Re: Primary Colonic Lymphoma Reply with quote

My followup has been determined. On April 24th I'll have a CT scan, followed by a Gallium scan on the 27th, and a colonoscopy on the 28th. Then I meet with the doc to find out what it all means on May 12th.

So still over a month before I can get the all clear sign.

Also a bit more anemic and my CRP is over 3 for some reason, but my LDH is back down to 238 and WBC is still over 35.

Looking forward to finishing this!
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009
Back to top
ChemoMan
Moderator


Joined: 04 Jun 2008
Posts: 1027
Location: South Australia

PostPosted: Thu Apr 09, 2009 4:52 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

Hi Joe

Congats Joe I hope you get that NED at the next scans. keeping my fingers crossed........Just wondering do they have an easter break in Japan?
_________________
Age 52
Diffuse Large B cell Lymphoma
Stage 2a
Finished six cycles of R chop 21 26th May 2008
Officially in remission 9th July 2008
Remission confirmed 1st October 2008
Remission confirmed 17 June 2009
http://cancerforums.net/viewtopic.php?t=9620
RULE NUMBER 1.....Don't Panic
RULE NUMBER 2..... Don't forget Rule number 1
Back to top
joepet
Senior User


Joined: 18 Dec 2008
Posts: 273
Location: Japan

PostPosted: Thu Apr 09, 2009 5:01 pm    Post subject: Re: Primary Colonic Lymphoma Reply with quote

With less than 1% of the population as Christians, I think the answer is obvious.

Time to get dressed and head to work!
_________________
Age 37 (36 at diagnosis)
Diffuse Large B cell Lymphoma
Stage 1AE (localized in colon)
Began six cycles of R chop 21 3rd Dec 2008
Finished R chop 21 Apr 2009
Complete remission as of May 2009
Back to top


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