Newly Diagnosed and Terrified

dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

Hi, I was diagnosed with uterine cancer on the 9th. I see the oncologist tomorrow and I am terrified. I am 30 and have not had kids. I have no idea what to expect. How long does it take from diagnosis to treatment? My CT is scheduled for Sat. I don't even know what stage I am or anything. If anyone has any advice or even their stories that could bring me some peace of mind, I would greatly appreciate it. I have no idea what to expect. My grandmother died of cancer that started out as uterine cancer and spread, of course that was the early 80's, but still it worries me. Thank you all for your time.

aussiegal · New User Joined: 09 Sep 2008 Posts: 2

[color=blue][/color] Hi, I'm new to this forum so don't feel I have that much advice to offer but I couldn't let your post go with no response.

Firstly, I'm so sorry to hear of your recent diagnosis. You must be very worried.

I'm in the process of testing etc at the moment and see my gnyo again in 4 weeks and then will be having either hysteroscopy or more extensive surgery (her words). I'm worried enough myself with what could possibly be wrong, so I can only imagine how you feel actually knowing what is wrong.

I don't have kids either and know that adds another whole dimension to the situation so I feel for you there as well.

I pray you get treated soon and wish you peace in the midst of this turmoil.

dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

Thank you for your response. I pray that your problems aren't quite as bad and can be handled without surgery. I'll pray for that for you. I am off to the oncologist now...*bites fingernails*

Jellie · New User Joined: 16 Oct 2008 Posts: 2

I was diagnosed on 7/9 of this year and had my hysterectomy on 7/25. I tried to do it quicker, but it was impossible to arrange that fast. I assume you have been to the oncologist. How did it go?

Can I ask what your symptoms were? Also, why the CT scan? I did not have a scan, just a D&C and that's how I found out. I basically had no symptoms, but one day of bleeding after not having my period for three years. How did your doctor tell you? I was very unhappy with how I found out, so I'm curious.

The hard part was waiting for the pathologists report, which took about 4 days after surgery. I found out I was stage 1B, so I feel very lucky.

Are you having your lymph nodes removed?

dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

I have been to the oncologist. My surgery is scheduled for the 10th...my 31st bday...lol. I guess the appointment went ok, I was in shock still most of it.

I have been continuously bleeding since May of 2007. Prior to that my periods were less than 4 a year and some times I would go years without one. I am not sure why they are doing the CT scan, there are a bunch of tests I have to get preop wise.

My doctor called me and asked to see me after the pathology from the D&C came back. I never imagined it to be this bad and neither did he. He told me the news, assured me it was treatable and I would be fine, not completely cause choices had to be made, but I would live. He made sure I was ok to drive as I went alone thinking it wouldn't be that bad. He made the appointment with the oncologist for me, called me and told me when it was.

I am nervous about the wait on the pathology. They will be taking lymph nodes. I wonder how that will effect my already poor immune system.

Jellie · New User Joined: 16 Oct 2008 Posts: 2

I also received a call from my dr's office asking me to come in right away. I asked why he wanted to see me and they would not tell me anything. I did some research during the couple hours between the call and my appt. and I knew what he was going to tell me. I just wished I had been told over the phone. It was torture waiting.

dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

I too thought it odd not to be told over the phone, but as a paralegal I thought perhaps it was some privacy issue or the fact he wanted to talk about treatment.

brainman

Often, doctors will not allow their staff to give information over the phone (even good news) because the patient may have questions that the staff person is not qualified to answer.

I am very sorry about your cancer and glad that you are receiving support from other women who know what you are going through.

dark0goddess, you are in my thoughts and prayers.
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dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

Thank you Jim.

jamic · New User Joined: 13 Dec 2008 Posts: 3 Location: Canada

Hey Dark,
I am 29 with no children either. I was diagnosed the 21st of October, and had a full hysterectomy on Nov 17th. Im not sure where you are, I am in Canada so im not sure if you can get in any sooner than a month. I am now 3weeks 6days post surgery and finally starting to feel like myself again, I start chemo on Dec 19th, but I have a positive outlook for the rest of my future. Keep your chin up.

Jaclyn
Diagnosed Oct 21/2008
Mullerian Adenosarcoma

dark0goddess · New User Joined: 14 Oct 2008 Posts: 8

I had the surgery on the 10th and it has been nothing but hell ever since. They nearly lost me because they over medicated me and I stopped breathing. I have pressure sores from not moving due to the over medication. It's just a mess. I had to use a wound vac and now I am facing radiation. I'm alive, but all I can do is hope and pray it gets better.

I hope your chemo goes well.

Gloria C · New User Joined: 08 Jun 2009 Posts: 7

I just got diagnosed as well. [b]Absolutely terrifed[/b]. Got the news Thurs. via a call at work & felt like my world just crashed. Don't know any details yet, just that it's cancer. See an Oncologist tomorrow. Even 'just' a hysterectomy sounds awful, much less chemo. I need to keep my job, don't get paid for time off, & my medical insurance leaves alot to be desired. And, I'm alone except my 2 cats & dog.

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