sad to be here!

mimirdh · Posted: Mon Nov 02, 2009 8:14 pm Post subject: sad to be here!

5 days ago my life was wonderful. engaged to a great guy and planning my destination wedding for may 21st, 2010. now just living day to day. not even sure if i will have my wedding as planned. my mom, although not always healthy, smoker forever was having a bad headache. i always yell at my parents to keep up with the doc's cause you never know! well my mom decided she might have a heart attack so she needed to go from watching some commercial lol . they do a ct scan and tell my mom and dad that she has lesions on her brain, she bugged out and left the hospital. yes i already know my mom is crazy, def nothing new. i get a call from my dad at 430 , hysterical with the news. it took me almost an hour to get her back in the car. from there we find out from further testing that she also has lesions on her lungs. in the brain she has 2 mod size lesions in the occipital region right and left and one lesion on right lung and speckles on both. she had a biopsy today to mostly confirm what type of cancer it is since i already know she has tumor markers in her blood.

my life has turned into a def nightmare! i'm sad for my family , my dad even more.and for all of you going through the same battle. my dad's just a mess right now! and we all are trying to stay positive but the stats are so bad its hard. i have had the docs go over all of the scans with me in detail to explain to me what they see. although its hard to hear everything i feel better that they will take the time to do so. i am however getting all of her records together for a consult at sloan kettering once her biopsy results come back.

well as i said i am sad to be on this forum, but as i continue to read all of your stories its nice to know we are not fighting this monster alone. all we can do is have faith and trust in that the doc's and meds do their jobs so we can keep our loved around a lil longer. i pray for strength because i know that this is just the beginning.

terrismom · Regular Joined: 19 Mar 2009 Posts: 46

My daughter started the same way. Headaches. I am so sorry that you mom is starting down this long road. My daughter was diag. Jan 31st of this year. She has had a hard time with the cemo, but as of right now she is doing pretty good. It is a terrible roller coaster.
Thoughts and prayers coming your way from me and my family.

Monell

dano · Posted: Wed Nov 04, 2009 4:07 am Post subject: Re: sad to be here!

Welcome mimirdh; I know that you have been rocked by the monster and that it will take a bit to feel which way is up and which way is down, and the world spins around. But from what you have shared I have confidence that your guidance will be very helpful. As you may know already that your mom's cancer is incurable but likely not unmanageable, though I'm not sure about your mother. You are in a position to help your mother, but will she except your help? I would like to hear more about your mom's condition as you learn about it so that we can share with you our experiences with you.
So far your mom's condition sounds similar to my experiences and I've been back to work for over a year and still taking Chemo treatments which seems to keep things in check. So no need for fears of her falling over and dying next month. Hopefully she will sign on for the fight and have many good days ahead of her. As far as the wedding goes, don't make plan changes to soon. There is a chance that you may eventually want to postpone it tell later, but there may be a need to use the wedding as a motivational tool for your mother to fight and follow the protocol to be at that ceremony. If you pull the plug on it she may have less interest in getting better.
Looking forward to get to know you
God Bless
Dan
_________________
55 year old male, Diagnosed Nov. 9,2007 with NSCLC IV with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08 treatments now every 4 weeks with Alimta, taking Lovenox for blood clots, Now working full time
http://cancerforums.net/viewtopic.php?t=9993

mimirdh · Posted: Wed Nov 04, 2009 9:13 pm Post subject: terrismom

thank you for your prayers!! we need as many as we can get!! i'm glad to hear your daughter is feeling better. she's a fighter! prob gets that from her mother;)

dano-
thanks for your encouragement! as of today the saga begins. nuerosurgeon comes in says we are scheduled for brain surg for tomorrow. fyi we have no diagnosis yet. 2 lesions of moderate size and my mom is asymptomatic. i say no and her general doc was very upset because he also wasn't spoken to about this . we will wait for results first before we do anything that aggresive. they didn't even speak to us about it, my fam was so upset. i'm collecting all of her records to get a second opinion at sloan kettering even though the hospital shes at is supposedly very good. well thats my day in a nut shell, first day back to work and all i was thinking was like the one day i decide t go back to work i'm thinking i should have been at the hospital.

dano · Posted: Thu Nov 05, 2009 2:16 am Post subject: Re: sad to be here!

mimirdh; 2nd opinions are always a good Idea, My oncologist and staff were very helpful in getting all I needed to get a second opinion. I am stuck here in Hawaii Cool

so I had to fly to Washington to the University of Washington Medical center which was rated #6 in the US for cancer treatment. What I learned was that I was getting good treatment at home in Hawaii, now if my pockets were deep I could have stayed and gotten more experimental treatment and more. But of coarse I don't have deep pockets. So I went home happy about my doctors. Once you find a good facility, try to be nice to all the staff and keep a friendly mood about you, get the information you need but kill them with kindness. Believe me it does a lot for getting good service and treatment. I have built a very friendly relationship with all the staff and I do get treated better because of that. I was even lucky to get my doctor to smile when I showed personal interest on how her day was going. These days you know it is a numbers game, get them in and get them out, by being friendly you can break the ice and let them know you care. Try to bring cookies or packaged snacks to the treatment room to share those nurses will remember you, and for some in the room have been there for hours with no food. For the most part here, the majority of the patients are Asian or Islanders and are old and tired looking and are the saddest group to look upon, so if you wear a smile you really stand out and smiles are always enjoyed.
I know your mom has not started treatments yet but I thought I'd give you a heads up, Some doctors can be frustrating while trying to get answers to your questions but try to pull the best out of them with out being confrontational.
I really like my Onc but initially it was hard to get information from her I found later that others on her staff were much easier about sharing the hard facts. My Onc though is a great listener always wanted to know all the details of what I was going through then together we would make needed changes. I hope you and your mother have success at finding the right center for treatment.
God Bless
Dan
_________________
55 year old male, Diagnosed Nov. 9,2007 with NSCLC IV with Mets to the lymphs and brain
Had full brain radiation treatment in Jan 08 treatments now every 4 weeks with Alimta, taking Lovenox for blood clots, Now working full time
http://cancerforums.net/viewtopic.php?t=9993

	Cancer Forums Forum Index -> Lung Cancer Forum	All times are GMT - 5 Hours
Page 1 of 1

A website for discussions about any type of cancer, including lung cancer, breast cancer, mesothelioma, prostate cancer, laryngeal cancer, leukemia, lymphoma, multiple myeloma and others